PDD-NOS and school issues and questions

iVillage Member
Registered: 03-31-2006
PDD-NOS and school issues and questions
4
Mon, 05-12-2008 - 2:00pm

My 8 year old son was diagnosed with PDD-NOS almost 2 years ago. He is VERY high functioning. He does have AD/HD, LD and memory issues (he can not remember many things, even after being told over and over again. He still has problems remembering his teachers name). Well, the school refuses to see his PDD-NOS and will not label him...even though they have labeled him with the other's. They say "We do not see it" and the school psychologist doesn't "see it" either. I don't know what to do. There really aren't any advocates I can find that can go with me to his ARD's. I get a few days advanced notice...and that's it. I don't really know anyone here (we live right outside of Houston, TX). He is in the 2nd grade...and he is learning a little..but by the time school comes around...he will forget everything. I try to teach hm during the summer, but since I am NOT his teacher...he doesn't seem to want or can't learn. Since he hasn't mastered anything and they think he can't re learn (he never has) within 6 weeks...they refuse to put him in summer school.


Then, there is the issue of insurance...his father (we are divorced) lost his job and he lost his insurance. I have tried to get him state insurance, SSI, medicaid, sliding scale dr's, private insurance...and am having a really hard time. We make to much for the state, SSI, medicaid and the sliding scale. The Private is WAY to expensive. What can I do? MHMR is way backed up, like a 2 year waiting list. I am at my wits end. I don't know what else to do. I need to get him help, I need to know what to do for school...I was thinking about homeschooling him next year, but that has just been looked down on and everyone has been telling me that it's not a good idea. I just don't know.

 
iVillage Member
Registered: 06-25-2003
Mon, 05-12-2008 - 4:03pm

Hello and welcome to the board.

I get the "we do not see it" thing with my DS in school, too. He was one of these kids who was an angel in school and a terror at home (he saved all the stress for his safe place: Home).

School is not obliged to "see" or agree with a particular diagnosis. However they are required to identify his areas of need and to address them. If he has issues with memory and retention, they should enroll him for extend school year (ESY) services to help him retain information. How does he test? Is he at grade level? If not, you can use this information to push for more help for him.

I don't know what you can do for insurance other to go through the school district for things like speech therapy and OT. -Many of us have been turned down by the district the first, second and thrid times. The trick is to be nicely insistent and never back down.

In NYS we have a "child health plus" program for kids with no insurance. I have no idea if your state provides anything similar. Maybe there are other Texans who can advise you.

Hang in there. I know it feels very daunting to take on the school and the challenges you are dealing with right now. Please feel free to come here as often as you need and to ask questions, vent and cry as much as you need. This is a safe place.

-Paula


visit my blog at www.onesickmother.com

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 03-31-2006
Mon, 05-12-2008 - 4:45pm
He is not anywhere close to being grade level. He is in the second grade (and that's after we held him back a year) and he is still on a pre-k level. Every single year I have asked about the EYS that you are talking about, and I am always getting told no...he hasn't mastered anything. He has to master something before he can be placed in EYS...and they think that he is not "disabled" enough for it?!?! I don't know what that means?!?!

 
iVillage Member
Registered: 11-28-2006
Mon, 05-12-2008 - 7:32pm

Oh boy, I am in the same boat.

iVillage Member
Registered: 04-28-2007
Mon, 05-26-2008 - 12:09am

Chiming in late here. If he hasn't mastered anything (a) he should not be passed onto the next grade level without further assessment and (b) their argument for no ESY is BOGUS! ESY is about worry about losing what he has learned OR he is at a developmental and learning milestone and needs the extra program. Does sound like your ds needs some special ed advocates here. You need to call officially for an IEP evaluation , to include on grade testing, Fine/gross motor/speech and ask for a functional behavioural analysis. Any one of these might get him an IEP; and in my experience anything allowing an IEP is a great start.

Dee

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