Returning after a LONG absence/Have a ?

iVillage Member
Registered: 06-04-2003
Returning after a LONG absence/Have a ?
3
Sat, 03-20-2004 - 9:37pm
I've posted here sporadically but haven't stopped by in about a year. My older DS Austin (7.5) was dx with Aspergers at age 5.5; now that he is in first grade we are really struggling with homework and attention issues. We have chosen to give him 25 mg Strattera for some of his hyper behaviors and it does seem to give him a little bit more focus, but his ability to learn simple sight words and sound out words is poor. We took him a couple of weeks ago to a private office for testing and were not surprised to learn that he is about 2.5 years behind his age in auditory processing and logic/reasoning. The office that provided the testing uses the PACE program to boost areas where a child has deficiencies. I've done some surfing online but can't find many independent opinions about this program. Has anyone here used PACE or heard anything about success/failure with Aspergers kids? They boast a 98 percent retention rate of the skills they teach after one year, but so far I can't find anything to conclusively show that these skills are retained and integrated into the child's learning skills beyond one year. The price for this program is pretty high and we want some objective feedback before we make this decision.

TIA for any opinions or advice.

~ Jules & Austin

iVillage Member
Registered: 06-04-2003
Thu, 03-25-2004 - 8:17am
Thanks, ladies. I've been asking around at DS' school (yes, he is in their resource program 2 hours/week) and also his old OT and am hoping to get a more balanced picture of this program; all the online stuff seems to be linked back to the company so of course it's all positive.

I read the posts about CAPD with interest because the testing we just had done on DS showed him to be about 2.5 years behind in auditory processing and logic/cognition areas. PACE addresses this by using a metronome & teaching the child to respond to the beat when answering or examining new information. DS' old OT whom he hasn't seen in over a year is going to re-eval him next month and when I asked her, she said they could try some interactive metronome activities and that they do see some improvement in focus and attentiveness with this technique. But she also suggested getting a referral to an audiologist for CAPD testing, so I believe that will be my next step rather than shelling out the $$$ for PACE right now. Our insurance pretty much covers therapies if they are done through the hospital where my DH works and it is a teaching hospital with a children's hospital attached, so just about anything we might need is available there, including people who can do the CAPD testing. So I guess unless I see some more objective evidence that PACE works I won't enroll DS right away.

~ Jules & Austin

iVillage Member
Registered: 03-28-2003
Wed, 03-24-2004 - 2:46pm
Jules, I'm a member of another board on Yahoo. There are a lot of people who have used PACE there. They really seem to like it. However, it is a dyslexia board. I'm thinking about trying it later on down the road, so if you try it, please let me know how it goes!

Sio

Who is very happy to see you again!

iVillage Member
Registered: 03-24-2004
Wed, 03-24-2004 - 12:58pm
Hi Jules and Austin. I'm new to the board and have a 7 year old dd with PDD-NOS, Aspergers. She is significantly behind at school as well (in 1st grade now). Is Austin in any resource programs at school? If not, it may help to look into it. If the school doesn't offer such services, I haven't heard of PACE specifically, but I do know that in some states the disctrict is responsible to pay for any services that will benefit your child that they don't offer (the "No Child Left Behind Act" of 1997), or they may suggest transferring Austin to another school that does have those types of programs.

Hope that helps! Best of luck to you!

Sincerely,

Alissa