Suggestive PDD-NOS Dx, New Here

Avatar for macgyver17
iVillage Member
Registered: 03-26-2003
Suggestive PDD-NOS Dx, New Here
4
Tue, 12-16-2008 - 2:57pm

Hi there,

I am new to this board and to be honest would rather not be posting, but I guess that is the same for all of us right. Anyway, my 3 1/2 yr old son was seen by a developmental pediatrician last week and their findings are suggestive of him having PDD-NOS, although he his CARS number did not meet the ASD cut-off. DH and I are think he has nothing more than a speech developmental delay and are getting a 2nd opinion with a pediatric neurologist on Thursday who specializes in behavior neurology such as ADHD, ASD's, etc. As with some of you, my son hit all his developmental milestones and has not regressed on anything as far as we know. He does however hand-flap on occasion when he gets excited, I have seen him tip-toe once in a blue moon, and while he is social, has been a bully at school (biting or hitting a child with a toy b/c he is not using language), he does make eye contact, answer questions and commands you ask of him, can be lovey, etc. He can sit for a while and listen well. He has limited pretend play, he would much rather play with his Thomas the Train, etc, I always thought of him as as boy's boy, b/c he likes boy stuff. He was in our state's Birth to Three program for which he barely qualified for speech and did not for OT. Then I contacted our state's ECCP program when my son was biting and hitting in school, which prompted me to contact a developmental pediatrician for possible answers.

After they gave us a Dx of what they thought he may have, they said to continue his speech therapy, etc. Didn't really give us much to go on, to how to better him if he does indeed have PDD-NOS. They even said if this is just a developmental delay, he could fall of this possible Dx next year. Argh, why do they like to not give us as much info as possible!

Frustrated!

Avatar for macgyver17
iVillage Member
Registered: 03-26-2003
Wed, 12-17-2008 - 2:44pm

Hi there,

Thanks for your support. I forgot to mention that my son has been a private daycare/preschool since he was 11 months and is doing fine now. While he did go thru the period of biting, etc. that has since stopped in his class since the newly 4 yrs old moved out of his class. The ironic thing as well was in May, I looked into our local preschool program b/c after my son was in our state's Birth - 3 program and it was ending, if he needed cont'd therapy if he qualified it would be thru our local preschool public program. In May, I they evaluated my DS and he did not qualify as a special needs child. I could put him in there as a typical. While I did contemplate putting him in there anyway as a typical and personally observed the kids in the program, I felt he was already learning more and doing well at his current preschool program, granted there were kids with special needs at the public preschool and that was not an issue with me, I just felt DS already was advanced in the preschool I paid for. I may re-visit the public preschool again if his suggestive PDD-NOS sticks, but would like to see how he does in the future. He has an early birthday and if I can would like to see him attend school as a typical if that is possible when he is in kindergarten.

iVillage Member
Registered: 06-25-2003
Wed, 12-17-2008 - 9:22am

Hello and welcome to the board,

I understand your frustration. It took us a couple of years to finally get a diagnosis for my son, although we knew he had special needs, some of the diagnostic signs were in conflict. Some kids are very tough to figure out!

The important thing, as was said earlier -regardless of diagnosis- is to identify the particular areas of need and to work on those. Although we had no diagnosis for Pete, we knew he needed speech therapy, occupational therapy and a special ed environment. We arranged all of this through the school district starting at 27 months. He was not DXed until he was 5½.

It is frustrating not to know the diagnosis, but please don't get hung up on it too much. The important thing is getting help and therapy for your son. And who knows, maybe in a year or two, he won't *need* a diagnosis.

Please feel free to stick around here for as long as you need.

-Paula


visit my blog at www.onesickmother.com

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 03-27-2003
Tue, 12-16-2008 - 6:57pm

Welcome.

                                

iVillage Member
Registered: 11-28-2006
Tue, 12-16-2008 - 4:05pm

Welcome!


We understand that frustration.