Well, I got a DX...I think....

iVillage Member
Registered: 09-10-2004
Well, I got a DX...I think....
10
Tue, 07-15-2008 - 1:30pm

As many of you know, I was pondering my possibility of being on the spectrum.

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iVillage Member
Registered: 06-25-2003
Tue, 07-15-2008 - 7:11pm

Ginny,

Yes it makes perfect sense. I remember when I got the ADHD DX it was pretty expected, but I did feel a weight of guilt lift off me. I had the "lazy, crazy or bad" thig drilled into me for years, (product of growing up in Ireland, convent education all the way up), and having the DX gave me a means to re-think a lot of stuff and forgive myself for not being able to do some stuff. Bottom line: It helped me to understand myself a lot better.

It is a process though, and I think you are probably still reeling a little. I have been thinking back: It's been less than a year since you joined us, right? And you have been through all the "stuff" and DX for Tony and now for yourself. It is an awful lot in a short space of time. (and Aspies don't handle change well ;) )

Please keep us in the loop. I am interested to see what hapens next with the doc.

-Paula


visit my blog at www.onesickmother.com

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 03-27-2003
Tue, 07-15-2008 - 11:31pm

Ginny, your posts about this has made me wonder about myself.

                                

iVillage Member
Registered: 08-27-2007
Wed, 07-16-2008 - 3:49am

Maybe I will get get a dx too....I have been having a lot of social issues where AS makes sense to me.


I was already dx with Anxiety and OCD a few years ago.


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iVillage Member
Registered: 09-10-2004
Wed, 07-16-2008 - 8:12am

I still am not sure if I'm thinking AS for me b/c its so much on my brain for DS.

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iVillage Member
Registered: 11-28-2006
Wed, 07-16-2008 - 3:18pm

This is such an interesting thread.

Avatar for betz67
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Registered: 03-26-2003
Wed, 07-16-2008 - 9:57pm

(((HUGS))) ok these are not meant to intrude on your personal space, just a cyber "know I'm caring about you" gesture. ;-)

You are not so different, many of the things you said would apply to me, many of the things you said would apply to my DH (those that don't apply to me). I've often thought I have many autistic characteristics, but not nearly enough to have a Dx and DH is an awful lot like an Aspie-- more than he wants to admit. I really do think I have ADHD-- inattentive type, but during school I was OCD to the point of making myself sick trying to be the perfect student. I also have battled an eating disorder, was anorexic in high school college, and now go between forgetting about food to obsessing over it but much more healthy than before. I've never been a good employee, can't seem to figure out the whole hierarchy of businesses and people. I'm always forgetting the rules of conversation, cutting people off and talking over others or if I remember to take turns I forget what I was going to say when it finally is my turn. I think I have apraxia of speech, can't find the right word (but usually know what color it is and how it looks but can't read it out of my mind into my mouth), lose a sentence while speaking, forget to talk sometimes (I'll be talking in my mind but not saying anything w/ my mouth). I've never had SLT, just sort of struggled on, it's actually gotten worse as I've gotten older. I often will use a different word than the one I really want 'cause I can't retrieve it or I'll define a word in a sentence 'cause I can't remember it. I find it much easier to type than to speak, words just sort of appear on the page w/o my having to form them in my mouth and they come so much easier.

Pain and noises have color associated with them in my mind. Not that I see that color w/ my eyes, just in my head.

I don't want to get a Dx, I really am ok w/ how I am... tho sometimes I'd like to be able to explain me a little better to others, but I'm not sure a Dx would do that. I'm just a unique quirky person.

Betsy

iVillage Member
Registered: 11-15-2006
Mon, 07-21-2008 - 12:36am

Paula


When did you recieve your ADHD dx?

- Christina mom to-

Chloe (10)    Aiden(8)   

iVillage Member
Registered: 06-25-2003
Mon, 07-21-2008 - 8:48am

Christina,

It was in 2005 and I was 38yo. I had known for a few years that I had it. I had read up on it when they thought Peter had it and thought to myself "well, Peter does not have that. ...but I'm pretty sure I do!".

When it started getting "worse" around 2005, I sought a formal DX. I asked my neurologist about it and she referred me to a psychologist for testing. I was DXed and the psych recommended Adderall, which the neuro prescribed. It helped a bit. But then the seizures started and Adderall was nixed immediately. It lowers the seizure threshold.

It turns out that ADHD can't get worse, and my worsening cognitive issues are probably due to whatever neurological disorder I have, the one that causes the seizures. I have a working DX of Cognitive Disorder NOS while they try to figure it out.

However, I am glad I sought the ADHD DX because it helped me to understand myself better. It also helped DH to understand that a lot of the stupid things I do, like leave the phone handset in the fridge, are not deliberate and not my fault.

-Paula


visit my blog at www.onesickmother.com

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 09-10-2004
Tue, 07-22-2008 - 10:27am
Paula, I think I'm going to get a second opinion.
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Registered: 06-25-2003
Tue, 07-22-2008 - 12:13pm

Ginny,

wow! Yes that is quite a cocktail to be starting out with!

Ambien scares me. DH takes it sometimes, and I have had a hard time waking him. Once it took me two full minutes to wake him so he could turn (he snores really loudly). That scared me off Ambien, I tell you. I never want to take anything that would make it difficult for the kids (or anything) to wake me.

Also my friend had the problem with doing stuff and not remembering anything about it on Ambien. She woudl wake up in the morning to find the fridge raided and food/wrappers in the bedroom. She lived alone, so knew it had been her, but she would have no memory of doing it whatsoever. She used to unplug her phone she she would not "Ambien dial" anyone!

I think what I am trying to say in my rambling way is I think you are smart to be leery of the drugs and to get a second opinion.

I am still waiting for the results of my neuropsych eval last month. I hate waiting.

-Paula


visit my blog at www.onesickmother.com

-Paula

visit my blog at www.onesickmother.com