CFRD

Avatar for adamsmomplus2
iVillage Member
Registered: 09-09-2000
CFRD
2
Wed, 02-19-2014 - 1:18pm

Is anyone still here? We are now in the monitoring phase for CFRD. Sarah had a 7-day internal glucose monitor the week of Thanksgiving and we met with the endocrinologist about the results 2 weeks ago. Some of her glucose levels were near 180, but we didn't quite make it to 200 which is the "you definitely have CFRD" threshold. We will repeat the internal monitor in the fall. In the meantime, anytime Sarah has an exacerbation or goes on steriods she is supposed to do a finger prick 3x a day. We are looking at a diagnosis of CFRD within the next couple of years.

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Registered: 10-12-2010
In reply to: adamsmomplus2
Thu, 02-27-2014 - 10:59am

Oh, MA, I'm sorry to hear that.  I'm expecting the same thing, although I keep praying Paige will at least be in her 20's.  She's *so* bad about needles and blood, I can't even imagine doing finger pricks and insulin shots.  She had her first glucose test last year and I think the number was 177.  She should have another one coming up in April.

What exactly is an "internal glucose monitor?"  I've never heard of that.

 

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Avatar for adamsmomplus2
iVillage Member
Registered: 09-09-2000
In reply to: adamsmomplus2
Thu, 02-27-2014 - 2:41pm

Hi Monica,

The internal monitor/sensor is about the size of a half-dollar and has a small catheter that goes under the skin and monitors blood glucose every 5 minutes. Sarah had it in for 7 days. They then get the info off the chip and provide lovely colorful graphs of blood glucose for that period. Along with our tracking when she ate it gives a good picture of how her pancreas is/isn't producing insuliln when needed.

Protocols used to start the oral glucose tolerance test (with the Glucola) at 12, but ours is starting them at 10 since they're seeing the higher blood glucose levels earlier. If the oral GTT shows a level near over 200 at one or 2 hours, they recommend the internal monitor to get a better idea of what the real-life situation is.

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