have hypotonia, eye issues, dev.delay??

iVillage Member
Registered: 06-18-2007
have hypotonia, eye issues, dev.delay??
3
Tue, 07-08-2008 - 4:04pm

*I just posted this on the hypotonia board, but thought I'd put it up here too*



Hello everybody!

Genny, mama to Kyan, 3 years old!!!, cdg syndrome


Kyan on the airplane!  jan 08


P1010042.jpg kyan on the airplane, Jan 08 picture by ilovemykyan

iVillage Member
Registered: 08-14-2005
Wed, 07-09-2008 - 12:03am

Genny - thanks so much for sharing this information with us. I think it's really valuable. And I'm so happy that Kyan is doing so well.


iVillage Member
Registered: 06-18-2007
Wed, 07-09-2008 - 12:09am

Hi Carol :)

Genny, mama to Kyan, 3 years old!!!, cdg syndrome


Kyan on the airplane!  jan 08


P1010042.jpg kyan on the airplane, Jan 08 picture by ilovemykyan

iVillage Member
Registered: 03-27-2003
Wed, 07-09-2008 - 8:15am

It is exactly this kind of information that makes this board invaluable for so many!