Hi im new!! Any swaddling experts ????

iVillage Member
Registered: 04-29-2008
Hi im new!! Any swaddling experts ????
6
Wed, 05-07-2008 - 4:03pm
My name is mandy and I have a 8 month old daughter, Isabelle. She was diagnosed with torticulis when she was 3 months and after 5 months of physical therepy, it was decided she need a helmet to reshape her head(plagiociphily I believe is the correct term) We go to seattle childrens hospital this friday to get the helmet and then across town to be fitted for a neck brace, because the torticulis is not correcting itself......its gonna be a long day!!! Im glad to find this message board, i feel like im stressed to the max, as im sure alot of you feel....My most recent worry is the insurance company has informed me they will not pay for the helmet, because it is considerd cosmetic........and its cost out of pocket is 1,900.00!!! This helmet will round out the shape of her head so she can sit up, and roll over(she cant do this yet because the weight is all on the larger size of her head), not because we want her to become a bald model!!! so thats kinda frusterating......she will be wearing the helmet for 6 months. 23.5 hours a day...only being takin of at bath time.......another of my worries will be this summer, her getting to hot...she sweats so much already!!! And i dont know if any of you others have experienced this, but im still having to swaddle her!! i have tried and tried to get her to sleep without being wrapped, but nothing works......if her arms are free she will flail them and grab at her face, and cry.....ive asked the doc and she doesnt seem to think its anything to worry about, but summer is nearing and with that helmet on, she will get
iVillage Member
Registered: 01-25-2006
Wed, 05-07-2008 - 9:29pm

Hi


My son had torticollis and plagiocephaly too, so I just wanted to say I understand your worry and stress. He has low muscle tone too. He started PT at 2 weeks for the torticollis and it was considered resolved at 19 months. He also wore 3 helmets- his were Doc Bands, from 7 months until 18 months. The thought of

iVillage Member
Registered: 04-29-2008
Thu, 05-08-2008 - 12:27am
thanks so much for your reply!! I will def check out those message boards, and im headed to target.com right now...thanks again!!
iVillage Member
Registered: 03-27-2003
Thu, 05-08-2008 - 11:20am

Welcome!!

iVillage Member
Registered: 03-30-2005
Sat, 05-10-2008 - 2:54am
My DD insisted on being swaddled forever too - until she was 7 months or so and could roll herself over onto her tummy. A friend of mine made some blankets - large squares made out of similar material to bed sheets. They were light enough not to make her hot, and large enough to get a really tight wrap. I'd guess they were about 4ft square. You probably could cut up some actual bedsheets and make 'em yourself (if you're handy in that way)

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iVillage Member
Registered: 08-14-2005
Sun, 05-11-2008 - 9:30pm

Hi Mandy. Megan also had really bad torticollis, and plagiocephaly. We asked about a helmet, and our ped thought it would round out on its own, and we knew it would be a huge hassle and I was afraid of the same things you are. So, we didn't do it, and I really regret it now. Megan's 7, and still has a very noticable flat spot. I would love to be able to do her hair any way without calling even more attention to it. I'm sure the 6 months will be difficult and it's a shame that insurance won't cover it, but I think it will be worth it in the long run.


Good luck.

iVillage Member
Registered: 01-13-2008
Wed, 05-14-2008 - 5:58pm

Hi Mandy -


I am in Seattle as well and my daughter, Lily, had a helmet two years ago through Children's. I would make sure that you talk to someone at Children's regarding the denial of the claim - we had to jump through some hoops but we were able to get the helmet approved.


My daughter also loved to be swaddled until she was 6 or 7 months old. It turns out that she also had hip dysplasia so swaddling was really not a good idea. Have you had your daughter's hips checked?


To get Lily off the swaddle, we started by just swaddling her arms which helped her settle down to sleep and then if she came out of the swaddle, it was generally OK. It's kind of a fog now, but I also think that she went through a really bad sleep period and we just ended up going cold turkey on the swaddle since she wasn't sleeping anyway!


Don't worry too much about the helmet, it was pretty easy to adjust. We just ran across Lily's in the closet and I can't decide what to do with it. I'm kind of attached to it, so I don't want to throw it away, but then, keeping it doesn't really make any sense!


I hope all your appointments went well.