My Older Children have Hypotonia sorry so long

iVillage Member
Registered: 10-16-2011
My Older Children have Hypotonia sorry so long
3
Sun, 10-16-2011 - 3:49pm

Since 2000 we have always known our son had delays. It began with projectial vomiting and constipation at 3-6 months old. Then at 18 months he started vomiting whenever he ate the opened his mouth. It took another 18 months for his doctor to finally say he had acid reflux . We also began to notice that during that time he stopped learning new words . He only said a few words tops at age 3 . We changed doctors after all the stress caused with mis diagnoses. Our new doctor is/was great with getting him evaluated .

We got him into speech therapy finally at 3 through the local school system . He thrived a first then stopped doing all manual work without being prompted by an adult . We got him occupational therapy at age 5 for his lack of fine motor skills . That lasted until he was 8 years old. The school system said he speeched Out

Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
First off, welcome to the board. We also have a Hypotonia board, the parents tend to post on both of the boards: http://forums.ivillage.com/t5/Hypotonia/ct-p/iv-pphypotonia

Please don't feel guilty about not getting the diagnosis for so long, it's a very hard one to diagnose. Have you thought about getting your youngest daughter privately evaluated?

I also wanted to refer you to the Special Education Plans board for help in dealing with her teacher. They've all been through this before and can provide you with some guidance: http://forums.ivillage.com/t5/Special-Education-Plans/ct-p/iv-pppiep

iVillage Member
Registered: 10-16-2011
Thank you I will check that board out too.
iVillage Member
Registered: 06-28-2007
Wed, 10-19-2011 - 11:07am

Its hard to see your kids struggle but its nothing you can control.

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