New here -looking for similar experience
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|Fri, 07-11-2008 - 2:08pm|
Hello, I'm new to these boards.
I have two kids. A son who's almost 5 (NT), and a daughter who's 2 1/2.
I'm still not sure exactly where DD fits into things, so here's a bit of background.
2yr old checkup - speech quite delayed and staring spells = hearing checked (fine) and EEG (abnormal)
Ok, so abnormal EEG sends us to Texas Children's Hospital to be eval by pedi neuro - dx w/ pdd-nos and did a second EEG and sedated MRI. EEG was normal and MRI showed severe delay in the development of white matter.
At times, it's hard to believe much of anything is wrong w/ her - she has met most milestones, she just tends to meet them late and needs a little help getting there. There are signs of atypical behavior, like some hand flapping, she doesn't have appropriate emotional response to someone crying, lack of spontaneous pretend play (if left to her own, she'll mostly move things in and out of other things).
It just feels strange b/c she doesn't really 'seem' to be "special needs". Does that make sense? I don't know. I guess I just don't know where she fits you know?
Anyway, sorry for the long intro, and I hope to get to know y'all better.