What to expect at Develop. Ped. eval?

iVillage Member
Registered: 11-15-2003
What to expect at Develop. Ped. eval?
5
Thu, 05-22-2008 - 7:13pm

Hi everyone!

I'm Nicole, I'm first time mommy to Zoe, who is 15 months old. Zoe was dx with torticollis and muscular weakness at 6 weeks old and was in PT for that. Then she was dx with Sensory Processing Disorder at 7 months and still is in OT for it. At 10 months she started going back to PT for problems with her strength and balance--her left leg is externally rotated and she has a pronated stance and wears Sure Steps orthotics.

Anyway.....at her 15 month appointment her pediatrician ran down the usual list of questions and as usual, it seemed we were answering "no, she doesn't do that yet" to most of them. Her pediatrician wants to see if there could be something causing her delays. She ordered bloodwork done and also referred us to a developmental pediatrician.

I filled out a 16 page packet for the dev. ped. (!!) and our appointment is on June 10th. I am just wondering what to expect for the appointment? I like to be able to plan ahead and have an idea of what will happen and what questions will be asked.

Thanks so much in advance,
Nicole

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iVillage Member
Registered: 03-27-2003
Fri, 05-23-2008 - 8:01am

Hi Nicole - I think every dev dept operates a little differently, but at our Children's Hospital, you go in and have a toplined eval where you and the doc decide what other evals would be helpful - speech, OT, PT, genetics, nutrition, psych, neuro, etc.

iVillage Member
Registered: 11-15-2003
Fri, 05-23-2008 - 10:06am

Hi Marina,
Thank you so much for your reply! That makes sense to me---because when the appointments person spoke to me about setting up the appt, she told me we'd meet with a nurse practioner first, then "most likely" schedule another appointment with the actual doctor. Who, btw, is Dr. Del Angel at Dell Children's Hospital in Austin, Tx, if anyone is familiar.

Zoe's pediatrician has already referred her to a neurologist for some of the same issues but mostly because she has brief shaking episodes after waking. An EEG was done and came back normal. My only concern is that the neurologist was very cold and spent VERY little time with us, and did not address any of our other concerns. So I don't know that we got a decent assessment from him....but then again, what do I know, right?

Again thanks for your post, I really appreciate it!

Nicole

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iVillage Member
Registered: 03-27-2003
Fri, 05-23-2008 - 3:53pm

Nicole - one thing you have to put aside is the "but I don't really know anything" - you DO.

iVillage Member
Registered: 06-28-2007
Sun, 05-25-2008 - 11:06pm
HI and welcome. I didn't read your post earlier because we don't see a developmental ped. Your dd is adorable! I would look into a new neuro if I were you. You know your child and deserve to have your concerns addressed. My opinion is having a doctor you can work with and who listens makes a huge difference. Don't be afraid to do what you need to for your little girl. I hope your appt goes well. Keep us posted. Kari
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iVillage Member
Registered: 11-15-2003
Mon, 05-26-2008 - 1:14am

Thanks so much, and you are both right. It's funny (in a way)...because I used to trust everything doctors had to say, until I became a parent. Then I realized that not every doctor is perfect or going to do everything they can...and that I am my own child's best advocate. I guess I was just intimidated a little by the neurologist...I even prepared myself going in---I looked over all my records so I could have immediate answers to his questions and not have him think I'm an idiot.

I do know so much about Zoe's issues, I have become an expert in things I had never even heard of before having her, as all of you have too. So I need to not let a doctor like that intimidate me, and I will bring it up to the developmental pediatrician to see if they believe more should be done. I also mentioned it to her regular pediatrician and honestly, that could be part of the reason why she then referred us to the dev. ped.---maybe she thought they could provide better help.

Anyway, I'm babbling. I did get the results back on her bloodwork that her regular ped. ordered and apparently it all came back normal, so that is very positive news. I really appreciate your input, you women seem like a wonderful group of caring, strong mothers.

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