Would you want to change your child?
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|Fri, 08-02-2013 - 4:22pm|
That's a question one mom is asking about her her son who has cerebral palsy, with all the advancements that have been made in gene therapy. While she doesn't want to hold her son back, she feels that he wouldn't be the same child if he no longer had CP:
The cerebral palsy is in Max's movements, mannerisms, gestures, stance, sounds. It does not define him, but it is an integral part of who he is, same as his little sister has her ways. While I sometimes wonder how Max would would move, sound and behave if he didn't have CP, in the end I can never conjure up anything. He wouldn't be the kid I know and adore without the CP.
But then, I think, I'm being selfish. Because the CP creates obstacles for him. I see all the time that the world isn't an easy place to navigate physically or otherwise for a kid with special needs, and it pains me and makes me anxious about Max's future.
What do you think?