One Mom's Letter to You

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Registered: 11-13-2008
One Mom's Letter to You
Fri, 10-18-2013 - 2:34pm

The following is a letter from a mom to parents just starting out on this journey, on the one year anniversary of her son's DS diagnosis:

Dear Fellow Warrior,

I don't know you, yet I feel that we are connected. I remember walking in your shoes and fearing for the future. I remember feeling so alone, then finding others who were experiencing the same emotions, and it helped me cope with the news that you are dealing with today. And so I write this letter in the hope that you find it. I write in the hope that you know you are not alone.

It has been almost exactly a year since we received Quinn's Down syndrome diagnosis. I sat down in front of the computer and told the world our story in a post that makes me cringe when I read it now. In the year that's passed, I've had a chance to look back on those raw emotions and remind myself that I didn't know then what I know now. And most importantly, I hadn't met Quinn yet, whose very existence is my greatest accomplishment. He represents my courage in a time of doubt, patience in a time of chaos, and the unyielding strength of a tiny human that I took for granted.

You can read the rest of her letter at: http://www.huffingtonpost.com/megan-davies-mennes/for-the-parent-who-just-received-a-down-syndrome-diagnosis_b_4101033.html?utm_hp_ref=parents&ir=Parents

I hope her advice helps in some way, please share how you are doing.