17-month-old with SID diagnosis
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|Thu, 11-11-2004 - 2:01am|
The OT said he seems to be hypersensitive for tactile (especially oral) sense and hyposensitive for vestibular sense. Is that common to have two totally different problems? Tactile issues include not wanting to hold hands ever (but OK with having the back of his hands touched), hating having his fingernails and toenails trimmed, hating having his hair cut (but he's OK with having it brushed or washed), at times walking on tiptoes (but not that often), feeling uneasy about sitting in grass with bare feet, and major feeding issues (just recently started eating mushy solids, but won't eat anything crunchy). Vestibular issues include loving rough play and having poor balance (but he didn't start walking until 6 weeks ago).
The OT thought my son was at a 14-month-old level for gross motor and fine motor skills. It was weird - he could do some things that an older child (19 months old) would be expected to do, but couldn't do other things that a much younger child (10 months old) would be expected to do. She said my son seemed to have very low muscle tone around his mouth, which I would think explains his major feeding problems from DAY ONE and his communication delays.
My son still needs to be evaluated by an ST because he's REALLY behind in communication. He does no gestures at all and says only one word consistently - "ball" for anything round. He isn't even consistent with mama or dada, although I THINK he assigns those names to us. What would cause a delay in gestures, as well as not being able to do shape sorters?
What could be going on if, at times, Kyle doesn't make good eye contact or pay attention? It doesn't happen all the time - only sometimes. I always thought he just didn't want to pay attention at the time. (He does have a congenital eye problem he inherited from his father - nystagmus, or "wobbly eyes" - but otherwise good vision.) Other than this, Kyle is very social. He wants to be picked up often throughout the day and interacts with us a lot, wanting to be on the sofa with us.
Both evaluations are to see if my son will qualify for the state's First Steps program for babies birth to 3 years old who have developmental delays. I really hope he qualifies, as he really needs help, especially with oral defensiveness. But if he doesn't qualify now, it will be only a matter of time before he will because I think his delays will only get worse as time goes on.
I cannot tell you how much of a pain it has been to feed my son, and it STILL is a major struggle. I swear he would rather not eat at all some days. I don't know if he processes hunger messages his body sends - can that be an SI problem? I await the day he tells me he's hungry - I will fall out of my chair in disbelief and leap for joy!
Michelle and Kyle (5-28-03)