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|Fri, 03-04-2005 - 10:54am|
Okay ladies here's another question. It seems like something new keeps coming up that I need answers to. While my dd is making progress at OT with the massage/compression therapy we started in January, her therapist feels like she should be doing better. The OT feels like part of the problem is because she is in school and instead of being able to do her therapy every two hours, she has to go for 7 hours at school with nothing and then we do the therapy every hour until she goes to bed. Her OT has asked me to talk with the school and see if it is possible for someone to do the therapy at least once during the school day. It takes maybe 5 minutes to do it and ANYONE could do it! Anyway, I talked to her teacher and she didn't really seem willing to do it. She suggested I have a conference with the principal. I know IEP's have been discussed here but I'm afraid they won't do one for her because her problems do not directly interfere with her education, she always gets top marks and never gets in trouble for disruptive behavior. Her issues are primarily tactile defensiveness with clothing. Getting her dressed and to school can be a nightmare but once she is there she tends to be able to cope. (She has a great desire to please her teachers!) We have had a few phone calls where she has pulled her pants up to her crotch and her sleeves up to her arm pits. They were concerned about her but she was not disruptive she just seemed very unhappy to them. I've also have to send a change of shoes (she will only wear clogs)on days she's required to wear tennis shoes for P.E. but they seem okay with that.
So with all that in mind, my questions are, "Is the school still responsible for treatment of children with a diagnosed chronic problem? Does anyone else have a school age child that needs brushing/compressions or massage therapy? How do you handle this while they're in school?"
By the way, I have not contacted the principal yet for two reasons. The first, is I'm not sure how best to bring this up to get the answer I'm hoping for and the second is that my OT also wants to switch the therapy from massage/compressions to brushing/compressions next week.
Just so you'll know, if the school refuses to have someone help I have considered going once a day myself to do it but I also have a 2.5 year old and another baby due in June.
I would appreciate any thoughts.