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|Tue, 04-08-2008 - 11:18am|
I posted this on the ASD/PDD boards and thought I would get your thoughts here as well too since we know that at least part of the problem is a sensory issue.
My daughter is three, has been diagnosed with autism, and has decided in the past six months to completely quit eating anything even slightly nutritious for her.
She has a history of feeding difficulties from birth and the problems have always varied. We knew she had some sensory preferences and some foods have always been off limits for her. However, in the past six months, she has stopped eating even the preferred foods. First, it was dinner she refused to eat - no matter what I served. Then, it was lunches that were refused in the past month and now she's beginning to do it with breakfasts.
Her expressive communication is limited - while she is chatty, she isn't able to explain why she won't or can't eat.
We have tried EVERYTHING that is usually recommended. We do everything we are "supposed" to do to encourage healthy eating habits. We have seen two psychologists and several speech and occupational therapists and no one seems to be able to pin down anything concrete that will actually help.
My daughter likes novelty (I know, not typically autistic behavior). She likes the newness of a situation or strategy or even food. Then, she wises up, lets herself really feel what she thinks of the situation and does away with the person, the situation, the food, the strategy, the schedule, you name it, almost never to return to it with any effect again.
Has anyone experienced this? How do I find a specialist that can look at my daughter as an individual and not a diagnosis? For example, she has very specific behaviors that are both atypical to autism and to typical development. She doesn't fit the book no matter which box you try to put her in and I need help. I'm really getting frustrated and feel like I'm at the point where I cannot see this with an objective eye anymore and need someone to work with my daughter regularly, not just hand off a list of suggestions I could have found on the internet for picky eaters. Ok, that was a bit of a rant. But, does this sound familiar to anyone?
As a side note, there aren't any medical reasons that have been discovered for this behavior. All the "usuals" have been ruled out and the medical world is saying it's behavioral.