Help in WA

iVillage Member
Registered: 07-24-2003
Help in WA
7
Fri, 02-08-2008 - 7:46pm
Guess I'll start from the beginning. My son was evaluated for developmental delays when he was 3 in NC. He did a year of early-in pre-k there, then we moved out here to WA and got him transferred into special education pre-k where he did 2 years. Now he's in kindergarten and still sees an OT and SP, as well as a resource helper at school. My problem is this. He has not been diagnosed with any definitive disorder. He shows SO many signs pointing to SID though. He did wonderfully with the deep pressure vest used the last 2 years, but does not use it this year and he's struggling. The school reviewed and did a mini re-eval on him this past fall and found he still qualifies for special education services, so we are working on his new IEP. But here's my problem. I want more answers to what he may have, but our health insurance is about to come to an end and he probably won't be able to get screened through them. Does anyone know where I can go from here? Otherwise I'm just going to continue playing trial and error with him for the next how ever many years. I've contacted his SP today (she was the only one I could get a hold of) and she talked with the others so hopefully I can see them next week. Thanks.
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iVillage Member
Registered: 09-27-2007
In reply to: daisygrlab
Fri, 02-08-2008 - 10:32pm

Is your son going to get new health insurance? They have programs that are state and fed. funded for children with no health insurance...which is in some states called medical assistance and in other states they have another name for it...

Jessie Mommy to Gabe (5.8 yrs old ASD, CAS, SPD) and Zane (1.10 yrs old ESD)

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iVillage Member
Registered: 04-19-2006
In reply to: daisygrlab
Sat, 02-09-2008 - 9:27am

I agree with pp on the nero. It could just be straight out SID (I have one that had speech and OT from a very young age and that is all it is). It could be hypotonia (Sorry bout spelling). I added a link for low cost or free insurance in WA but it may not be the right area. If not google free health insurance for kids in WA.


http://www.metrokc.gov/health/insurance/index.htm

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iVillage Member
Registered: 07-24-2003
In reply to: daisygrlab
Sat, 02-09-2008 - 1:10pm
Thanks ladies. We have not had one single doctor regularly. We are military about to transition out in the next few months, and our healthcare right now is an HMO. All of us have the same PCM, but I'm the only one who's ever seen him and even then, it was only 1 time. I'm looking forward to getting a different kind of health care, but am still trying to learn about health insurance in the US. It's so confusing. lol. Of course we will want insurance when we're no longer in the military, but as of now hubby doesn't have employment lined up and does not know if what he finds will offer insurance. I've heard Group Health here was really good, so I'm trying to learn about that too. aaaah.
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iVillage Member
Registered: 07-24-2003
In reply to: daisygrlab
Wed, 02-13-2008 - 4:01pm
Little update:
I spoke with his teacher today at lunch. He had a very bad day and he is copying everything other kids are doing. He blows at every little thing and has starting throwing tantrums (slamming chairs on the floor, etc). We have a meeting set up with his OT, and others on Friday afternoon. His teacher doesn't know anything about why he does this stuff, so her only thoughts is that if it continues, he's going to have to be removed.
Things are progressively getting worse and I can't help but cry now. The school doesn't have the things we need, so I think I'm going to have to spend out of pocket. Yeah, like I have that kind of money. I'm just so stressed out and hubby doesn't understand. His approach to the whole thing is taking everything away and spanking. I think that's why it's all on my shoulders because I won't let him do it. We take some things away, but found it didn't help anything. I'm just so upset.
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iVillage Member
Registered: 04-19-2006
In reply to: daisygrlab
Wed, 02-13-2008 - 4:50pm
The school has to make adjustments for him if he is found to be disabled (that's where the issues come in). You may end up like me and having to battle tooth and nail. Go to school board meetings with as much info as possible and also try e-mailing or posting to Allison al_vro she knows this stuff like no one else lol :) She can probably guide you in the right direction before Friday and tell ya what you should do on Fri. KWIM?
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iVillage Member
Registered: 03-27-2003
In reply to: daisygrlab
Wed, 02-13-2008 - 8:09pm

Lora,


I'm assuming he has an IEP.

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iVillage Member
Registered: 07-24-2003
In reply to: daisygrlab
Fri, 02-15-2008 - 9:04pm
So great news. Our meeting went great! His OT had found a weighted vest back in the preschool that she didn't realize they had (was used for a pre-k student last year who had moved, but it's a size sm so it fits). So they had put it on him this morning. His teacher was stunned. With the vest on, he came into the classroom and immediately sat down in his chair. When they started working, not only did he begin on his own (without throwing a fit that no one could help him), but he did the whole sheet himself and starting another one! So even though it's only been one day, it did show something. So we're starting there. I also picked up the book Sensational Kids to start reading.
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