Hi, I'm new here...

iVillage Member
Registered: 04-06-2005
Hi, I'm new here...
6
Tue, 11-24-2009 - 9:41am

Good Morning,

We have suspected my soon-to-be 4yo son has sensory issues for the past 2 years. Dressing is an on and off battle. Clothing is too hot/cold, "scratchy", etc. I struggle to get him out the door in time for school and lately it has been almost every morning he goes to preK.

He also has trouble with transitions, toe walks 95% of the time and is very "active" (meaning always moving, making noise), among other things.

We struggle with it because family members "don't see it" - they see the toe walking but just think he is a "difficult" child. He was getting OT, but the OT does not think he needs sensory integration. So I am stuck in this world right now where my husband and I know he has issues, but others are not willing to see them. I feel helpless at times, but try to keep pushing forward.

Would love to make some new friends here to have others going through the same, so we can talk.

iVillage Member
Registered: 04-21-2008
Tue, 11-24-2009 - 12:18pm

Welcome to the board! Boy, can I relate to your story! ;) Sounds a lot like my six-year-old DS. I hate it when people say he is a "difficult" child...when I know that, if he could help it, he wouldn't be so sensitive about things! DS's just as annoyed with his dressing habits as DH and I are. ;)

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iVillage Member
Registered: 04-06-2005
Tue, 11-24-2009 - 12:55pm
Thanks Tasha, just a tough day for us here I guess. It is nice to know others are going through the same. Does your DS have any help/therapy or are you guys dealing with it on your own?
iVillage Member
Registered: 04-21-2008
Tue, 11-24-2009 - 1:21pm

(HUGS)!

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iVillage Member
Registered: 04-06-2005
Tue, 11-24-2009 - 1:53pm
Most days I think I am better for getting the evals, though some days I think it is worse. I know what you mean about not pursuing it. We have been led down every path; ASD, CP, SPD and more - and we are still left w/o answers. Sigh. :) DS has good days where I want to just forget about everything. But then his bad days set in and I know there is an issue. The inconsistency of it all is so tiring.
iVillage Member
Registered: 04-21-2008
Tue, 11-24-2009 - 2:10pm

"We have been led down every path; ASD, CP, SPD and more - and we are still left w/o answers. Sigh. :)"


Big kudos to you for

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iVillage Member
Registered: 09-12-2008
Sat, 11-28-2009 - 6:54am

Hello and welcome to the board. My son has on and off again issues with clothes too. He won't wear any pants that have buttons on them. He cries if you try to put them on him. So he lives in workout type pants and elastic waist pants. He sure is going to look funny if he is wearing elastic pants at 15! We did find some really cool elastic waist pants at Children's Place.

Gabe toe walks...but he doesn't do it all the time. Mostly when he is bare foot or excited about something. Gabe also hand flaps and jumps in place. He is a sensory seeker. He loves to run and bash himself into the couch wall...the floor....people.

People also assume Gabe is just a bad little boy.....because he melts down with transitions if they aren't done the right way. We use visual prompts to transition. We have picture schedules and use social stories for transitioning and big changes that might occur. For example we are moving next week. For the last month we have been telling Gabe the same story about when we move. I am sure his behavior is going to tank for a little while...but by using the social story he is a little more prepared.

We also had private OT for awhile. She told me my son had ADD, ADHD, anxiety, ODD, OCD, but definitely not SID. We stopped going there. It was such a waste of time. Gabe gets sensory gym time at speech therapy. And we do a sensory diet at home. So I figure we don't need private OT right now.

Gabe has autism spectrum disorder. So a lot of his comorbid dx's are just part of ASD.

It's great to have you here. It's nice to talk to other moms that get it. Most people just roll their eyes at my parenting skills...or judge me...but if they only knew that I have probably had more behavior "training" then they will have in a lifetime. It is frustrating.

Hang in there....and again welcome to the board.



Jessie mommy to Gabe(4.6 years ASD/CAS/SID)and baby Zane



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Jessie mommy to Gabe(5 years ASD/CAS/SID)and baby Zane (1 year old)



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