HI THERE!! :)

iVillage Member
Registered: 07-11-2003
HI THERE!! :)
5
Tue, 03-25-2008 - 8:30pm
Hi All! I am so happy to have found this board! Let me introduce myself! My name is Tara and I have a 4 year old daughter who was diagnosed with SPD at age 3. We have been on a wait list for OT since that time (for an insurance covered program) and we cannot afford the out of pocket pay for private treatment (the eval alone is $800 and weekly pay is $130). At this point it looks like she is not going to get treatment. She does not fit into any of the school district "treatment" categories. So, I do what I can (on my own) to help her develop coping mechanisms but I would love to hear what you all do and what works!!! Looking forward to getting to know you all.
iVillage Member
Registered: 03-27-2003
In reply to: kaylee245
Tue, 03-25-2008 - 9:52pm

Welcome to the board!


Kids with SPD all look different, because there are SO many different kinds of sensory issues.

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iVillage Member
Registered: 07-11-2003
In reply to: kaylee245
Tue, 03-25-2008 - 10:36pm

thanks! I will try to summarize - its hard to know where to start. I forgot to mention before that she goes to preschool 3 half days a week and I know that she has had her share of outbursts but as far as I can tell, she's doing okay with blending in.

-extremely picky eater (eats only pancakes, bagels, eggs, chicken dinosaurs, snack foods)
-high activity level, always moving around/jumping (she also runs when she's angry)
-low tolerance for touch (dislikes hugs, brushing hair, bathtime, long sleeves or clothing in general)
-poor balance/coordination (very clumsy, trips/falls a lot, bumps head A LOT)
-poor mood (lots of crying, scowling, complaining, crabbiness)
-very easily overstimulated (needs periods of quiet between activities)
-has no idea how to calm self when overstimulated
-cannot hear what i'm saying/ cannot be "reached" when she is overstim/angry
-low tolerance for anything LOUD
-problem in crowded situation (becomes unglued)
-does not like people talking to her (looks at the ground a lot)

gosh well thats all i can think of right now, i am sure more will come up later as I read about your kids and begin to articulate the commonalities.

iVillage Member
Registered: 04-19-2006
In reply to: kaylee245
Tue, 03-25-2008 - 10:53pm

You have what appears to be a sensory seeker, welcome to the club!!!!! Deep pressure massage usually works ok when a child is over stimulated. When you want her to klisten to what you are saying touch her to get her attention and thn have her look into your eyes and repeat what you said. One step directions for ex. go get your shos then when she has say put on your shoes. A set routine will work wonders many mother here have a picture scheduale so the kids know what is going to happen when, this gives them a sense of control in their lives. As for the food if you look back in the post there are great suggestions.


OK now introduction :) I am Steph mom to five three have SPD as do I and many other mothers here. I look forward to getting to know you too.

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iVillage Member
Registered: 07-11-2003
In reply to: kaylee245
Tue, 03-25-2008 - 11:00pm
Hi Steph, nice to meet you! WOW you and 3 of your kids have SPD?? You must be so knowledgeable! Its really interesting that you say many of the mothers here have SPD as well. Do you think its purely genetic? I know I have some SPD tendencies too. Interesting! I will look back at the food posts, thanks! And you are right about the massage - it is one of the only things that will help at bedtime!
iVillage Member
Registered: 04-19-2006
In reply to: kaylee245
Wed, 03-26-2008 - 7:57am
I'm not sure that it is purely genetic but if ya scan down we have a folder for adult SPD. And I am pretty knowledgable but there is even a lot I don't know that's when the wonderful ladies here jump in :)
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