How do you deal???

iVillage Member
Registered: 08-21-2002
How do you deal???
7
Thu, 03-05-2009 - 12:45pm

Hi I was here last month with questions about SPD and since then my daughter has been dignosed with tactile defensivness and we have started OT this week.

Jennifer W (uclp)
mom to
Ashley (6-18-03 - ucl &ar, food allergies, Sensory Processing Disorder)

iVillage Member
Registered: 04-04-2005
Thu, 03-05-2009 - 3:22pm
I have a DD who was just diagnosed with the broad Sensory Integration Disorder but we are not sure what exactly her issues are all the time. She also likes all her undies and pants to be extremely tight and even wears them under dresses. It is a slippery slope as far as figuring out what sets them off into the meltdowns. My DD changes daily as well but there are some constants. It has been a trial and error and having the teachers at school pay attention as well. I handle the meltdowns by giving her love while redirecting her to a quite area and asking what I can do to make it better. I always take her suggestions to heart if they are reasonable. It is hard as she is a head banger and will do that if she gets too worked up.
Kashmir
iVillage Member
Registered: 04-19-2006
Thu, 03-05-2009 - 5:39pm
I have to agree with pp you will learn what will bring them on and hopefully be able to find a way to resolve them quickly. I have cbeen dealing with SPD for many years and there are still days I'd like to tear my hair out, but those days are becoming less and less frequent. HTH ((HUGS))
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iVillage Member
Registered: 04-21-2008
Fri, 03-06-2009 - 10:06am

"Plus she seems to just get worse everyday last week panties didn't bother her too much this week out of the 50 pair she has only 2 will do and they are the ones that are way too little for her."


*Sigh*

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iVillage Member
Registered: 08-21-2002
Fri, 03-06-2009 - 11:38am

Thanks girls!!!

Jennifer W (uclp)
mom to
Ashley (6-18-03 - ucl &ar, food allergies, Sensory Processing Disorder)

Avatar for ssjump
iVillage Member
Registered: 03-31-2003
Fri, 03-06-2009 - 7:56pm

Also make sure to get her to a "good" place before the dressing/meltdowns begin. Does it help to do deep-pressure? For some kids, this helps. For us, bouncing on the ball before dressing helps things out...we pick out the outfit (yes, still have favorites), do some bounces, and then some pressure/massage.

Hang in there. I am finding I like this reading this board now because it provides a celebration for how far we've come! Dressing will get easier, make your life eaiser too, and figure out what really aren't important battles!

iVillage Member
Registered: 04-07-2003
Tue, 03-10-2009 - 11:25pm

hi-

my daughter is like that as well, when she is home from school most of the time she like to put on her ballet leotard, i think the tight feeling really makes her feel better and that is fine with me.

i dont know how much OT she gets, but when we finally figured out that she has SID we bombarded her with sensory activities, she was getting 2 OT sessions at school (as well as a sensory diet once a day), and we added privately 2 times a week at a sensory gym and 1 time at home. we bought a small trampoline, a swing for her room that is very tight and cozy, a tunnel for her to climb through, a balance board and a few other things i am forgetting about now.

we are constantly making her do sensory activities both at school and at home. all of this has really diminished her tantrums by 99%, she still has them sometimes but they are usually so much less now. also when she has them, i ask her to go in her room and go on her swing and generally in 5 minutes she is out and OK.

we also started kaia on "therapeutic listening" and the OT who is doing this with her is also doing yoga which has also helped so much. when she is having a rough time, she is teaching her to breath properly and to be able to calm herself down that way.

when she was having a really tough time for a while if she started to tantrum and couldn't clam down, i would have her sit facing me and i would hold her hands in mine, and with my thumbs put very deep pressure in the palms of her hands, this calmed her within minutes. its very hard for these kids especially if they cant calm themselves down which is pretty common.

i hope some of these ideas help. you will see improvement once the OT kicks in, if it doesnt then you should ask the OT what else she can do.

alison

kaiamarin
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iVillage Member
Registered: 05-04-2003
Tue, 03-10-2009 - 11:35pm

Jen -


Ash just started therapy didn't she? Therapy pushes them and we often see what look like set backs and low frustration tolerance in Abigail when she starts something new in therapy.


SPD is a nuero disorder and incinsistancy is a characteristic. Not very encouraging, but just know that we've dealt with this with Abigail for 4 years now... and I still lose site sometimes that it's not all in her control.

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