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|Fri, 09-05-2008 - 9:23pm|
I wanted to introduce myself, I have been lurking for a while, and now that we have a confirmed diagnosis I know this is where I should be.
My daughter Kaia is 4 years old, she's had sensory issues since she was a baby, I am just finding out now all about sensory issues. I never really did know that most of her issues were sensory, since none of the doctors we've taken her to ever told us this disorder existed. I found out about it from a friend who was lucky enough to meet the right therapist who told her about it. We finally found a developmental pediatrician who believes in SID and actually has recommendations to help her. Most of Kaia's symptoms are:
- can’t handle loud sounds, covers her ears when she hears a loud sound
- likes to be in tight places, either hugged or sitting behind me on the couch
- very picky eater, prefers crunchy foods, and she will not try anything new. She also will not eat any foods that have a liquid and a solid mixed (like macaroni and cheese or soups of any kind.
- does not get dizzy at all, she can spin on a swing and it really doesn't affect her
- Her eye contact is amazing when she is physical, not great when she is sitting calmly
- hand flapping when excited, it isn't a stim, it is really that she is trying to get her energy out.
- loves rough physical contact, jumping on me, or her friends and tumbling a lot.
- she is so sensitive to sound that she has a very hard time with bugs, she actually covers her ears when she sees one inside and can get hysterical. The doctor told us that she is probably hearing the bug which hurts her ears.
- has temper tantrums that I cant calm her down, this usually happens when something she expected to happed cant or wont - like if we were supposed to go to the park and it rains she just cant get herself into the mindset that we need to change plans.
I am sure I am missing some but right now that is all I can think of.
The developmental pediatrician wants her to get 2 sessions a week at a sensory gym in addition to her 1 OT session at school and her 1 private session she has at home.
She also recommended that she start a Therapeutic Listening Program. Basically she’d need to listen to cd’s 2 times a day for 15 minutes and it is supposed to help her with her sensitivity to sounds/noise.
Has anyone heard of this before, and if so do you know anything about it. I just contacted 2 OT’s in our area that are “certified” in this therapy but I don’t know much about it except what I’ve read online.
Thanks for reading my post, and if you have any suggestions that would be great.