Monthly Brag Poll

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Monthly Brag Poll
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Sun, 08-15-2010 - 3:01pm

Our little ones work so hard. I find focusing on how much there is to do and how far we still need to go such a downer. So I thought we should celebrate with a monthly brag poll. Tell us...

1) Little One's Nickname and age
2) What types of sensory issues are you working on
3) Your brag this month

Oh - and although this is a sensory board, our little ones typically work on so many more things than just sensory, so brag away...

Caren

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iVillage Member
Registered: 09-12-2008
In reply to:
Sun, 08-15-2010 - 7:28pm

Hello my name is Jessie

1. My little one's name is Gabriel he is 5.5 years old. Nickname Gabe and a few other cute little ones....but he hates being called anything other then Gabe or Gabriel.

2. Sensory issue- At the moment severe oral aversions.

3. Brag...Gabe ATE a Popsicle!!! Three to be exact. Which is a huge thing....given he hasn't eaten solids other then yogurt for over a month.



Jessie mommy to Gabe(5 years ASD/CAS/SID)and baby Zane (1 year old)



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Jessie mommy to Gabe(5 years ASD/CAS/SID)and baby Zane (1 year old)



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Avatar for firstglimpse
iVillage Member
Registered: 04-08-2003
In reply to:
Mon, 08-16-2010 - 1:48pm

Nice! big swing under 4 ... got my kids beat by a long shot!
Yayy Gabe on eating something !

LC is 8.5 years

Working on taste/smells.
(Our constant battle has been food.)

Brags this month!

1. Learned to ride a bike.
2. Learned to tie shoes (sort of).
3. THIS ONE IS ONLY A FEW DAYS NEW!
.... dunking his head under water!!!

He's been in swim for nearly 1 whole year and tenses up so badly when his face is wet. LOL ... I believe he muscle development problems with SID. Before we got him arch supports he used to wake up in the middle of the night crying because of pain between his toes. Due to the feeling of the tears & snot on his face this would put him into hysterics - only to cause more tears & snot & greater hysterics. So just to calm him down enough to take a pain reliever was 2-3 hour job & he would wake anywhere from 3-5 nights in a week in pain. Doc told us to just give pain relievers, but after just getting arch supports myself, I finally clued in & took him to see my podiatrist & turned out he has high arches too.

So, we've gone from hysterics, to him volunteering to dunk his head under water is HUGE.

What a month it's been :)




"Only when we are sick of our sickness shall we cease to be sick."

~ Lao-Tzu, from The Tao Te Cheng



"Only when we are sick of our sickness shall we cease to be sick."

~ Lao-Tzu, from The Tao Te Cheng
iVillage Member
Registered: 07-06-2007
In reply to:
Mon, 08-16-2010 - 6:57pm

This is a good idea Caren. I am happy to see all your little ones making progress- It is nice to celebrate!

My little one is Mack and she is 22 months old.

We are working on sensory seeking behaviors as well as some oral aversions that have been tough.

Brushing her teeth has been almost impossible. I found a toothbrush that she has let me use 3 times in a row without crying or needing to be restrained. A little triumph.

She has also learned a game we call "push" and loves it. Whenever she starts to pull her hair out, I put my hands up for push and she is happily diverted to something else that helps fill her need. I'm slowly learning how to help her.

iVillage Member
Registered: 07-22-2007
In reply to:
Tue, 08-17-2010 - 2:05pm

My daughter's name is Natalie. She's 7 (8 in October)


Her biggest issues are lack of focus and attention due to sensory seeking and poor fine and gross motor skills.


Big accomplishments this month:


Coasting one footed on her scooter, running up to an escalator and not even flinching before hopping on and RUNNING to the top! This happened on Sat when we went school clothes shopping. In the past I'd have to hold her hand and about 20 steps would pass us by before she timed it right and took the leap. Even once she was on she would hold my hand and stand right in the middle of the step. My mom and I looked at eachother with our mouths hanging open when she didn't even break stride and just took off up the escalator!

Avatar for firstglimpse
iVillage Member
Registered: 04-08-2003
In reply to:
Wed, 08-18-2010 - 12:46pm

So would you say Natalie has high anxieties?
My son is 8 and also has poor motor skills.

I do believe he actually feels more pain in his muscles which is part of the reason he does't push himself to do more, but then anxiety holds him back as well.

Also, laying on the floor. Is this something she came up with or something she learned? Is she still this whole time? I'm working w/my son on laying down for 3 minutes at a time - working toward meditation, though he doesn't know that.

Congrats on the goal seeking & determination. That is great for the self-esteem. 200 books is a lot! My son was back at the library on the 1st day possible to turn in his reading sheet (15 hours). As part of the reading program there were shows on Wednesdays & the host asked if anybody turned it in and he was so excited to raise his hand & she asked if he was still reading & he beamed to tell her he reads an hour a day.

I think reading is great way to boost the self esteem when uncoordinated physically. My son also participates in gaming. Such as chess club & Pokemon league and that sort of thing. Oh yeah & our library now has a Lego club, which is great b/c he's in with his peers so he's more apt to use his fine motor skills w/o complaint.

I hope the stress of school doesn't hamper her great strides.




"Only when we are sick of our sickness shall we cease to be sick."

~ Lao-Tzu, from The Tao Te Cheng



"Only when we are sick of our sickness shall we cease to be sick."

~ Lao-Tzu, from The Tao Te Cheng
iVillage Member
Registered: 07-22-2007
In reply to:
Wed, 08-18-2010 - 8:31pm

Actually no, she doesn't have much anxiety at all. She's a SUPER outgowing (never had a shy moment in her life) and charge in and investigate kind of kid. But she is a HUGE CLUTZ! (I say that with love.) :) The thing is, it never appears to bother her when she can't do something. She doesn't get embarrassed....yet.

Her main problem physically is that her joints are really loose, but her muscles are really tight. (She's also on the larger size - 85 pounds at 4'3")

Holding a pencil is difficult because her hands are really loose and floppy. Running is very difficult because her heel chords are extremely tight (We're waiting for insurance to preapprove a stretch boot that she will wear at night)

She shies away from physical things because she tires out really soon and she's so uncoordinated that she gives up pretty easily.
Before we knew where her issues stemmed from I put her in an indoor soccer program winter before last. It was an hour long clinic...she did great during the first 30 min of footwork drills, but as soon as they broke up into teams to scrimmage she was tired and had totally checked out. While the other 15 kids were running like a swarm of bees around the ball she was off on her own spinning and singing to herself. Then she just sat down in the middle of the game. Needless to say, she wasn't interested in continuing in soccer.

One thing I'm always amazed about with her is that she has confidence in abundance! She is the most confident person I know. Which is great until there isn't anything to back it up. I fear that she will get a rep as a "bossy know it all" but the thing is...she usually Knows what she's talking about, she just can't always carry through on the physical stuff.

She came up with the laying down thing on her own. She had picked out this new SUPER SOFT fuzzy sweatshirt that I really want in my size! So she laid down and put that over her forehead and eyes and was just still. Well, her body was still...her mouth NEVER stops moving! :) (She's quite the chatterbox!

Have you had your son see a Physical Therapist for his pain at all? We are going to start PT in Oct after she finishes OT in Sept. I'm hoping that some intense physical work will provide further breakthroughs for her.

If he's having pain, I'd bet insurance wouldn't be an issue.

I agree, reading is SUCH a great confidence booster. We are all huge readers in my family and my husband's family...so our kids really have no choice. :) We went to the library today and checked out 40 more books for this week. She has 88 left until her ultimate reward. HORSE BACK RIDING! She is absolutely facinated with horses! In fact, I've been reading about Hippotherapy but I haven't found one in our area yet...need to do more research there.

Has your son started school yet? We don't start until Sept 7th here. She's super excited. I think I'm more stressed than she is! :)

Avatar for firstglimpse
iVillage Member
Registered: 04-08-2003
In reply to:
Thu, 08-19-2010 - 11:03am

LOL,my son was the exact same way for soccer! We attempted soccer for 1 fall & 2 spring seasons. But come game time he was completely red in the face from exertion & begged coaches to let him out of the game. He also did karate (thinking it was that he did not like the competition part of the game), but it appears it's the extended amount of physical movement.

Though, now that he learned to ride his bike, he was riding 2-3 hours at a time, with me begging for him to come in. So maybe interest has something to do with it too??

My son actually has confidence, but with anxiety. I know that sounds weird. He has tons of friends, too many friends - costs a bundle in birthday presents (goes to about 2 parties a month). Though, he does seem to have anxieties around adults. He also has an extreme fear of death (I wonder if it has to do with my brother dying when he was 2.75 years old). So his already lack of coordination combined with fear of being hurt or dying, holds him back on things physically.

Brain-wise he's a trooper. I thought this tiny boy would be scared of a chess tournament (went when he was 6), but was enthusiastic about the whole thing. Though, he doesn't win. Coaches who monitor the games have noticed, he has the capability of winning, but he throws the end game at tournament & we think he does this to be nice to the other player.

There is a school here you have to be invited to b/c it's only for higher academics and he's decided he's going to go to this school - even told a friend he'd sneak him the answers so he can go too, LOL - smart enough for the both of them :-|

I've talked to his doc about his pain, he doesn't think there is a problem. I took him to a podiatrist & that seemed to help a lot. I keep hoping if I can get him exercising everyday that would help with the pain. I'm trying to work with swim & yoga, thinking those are ways to build muscle w/o it being traumatizing.

He's underweight, but only due to his senses & fear around food. It's amazing what his nose can smell out - no hiding anything from him at the dinner table. Even have a hard time eating something different from our plates b/c the smell would drive him away. OT suggested air fresheners & around his plate, but that didn't work ... he's been getting a lot better with this though.

Lack of nutrition may also attribute to his physical endurance.

Thanks for responding.

Speaking of school, we do start on the 7th, in fact I need to run now to take my DD for her K-assessments right now.




"Only when we are sick of our sickness shall we cease to be sick."

~ Lao-Tzu, from The Tao Te Cheng



"Only when we are sick of our sickness shall we cease to be sick."

~ Lao-Tzu, from The Tao Te Cheng
iVillage Member
Registered: 07-22-2007
In reply to:
Fri, 08-20-2010 - 1:48pm

Aside from the Oral avoidance vs the Oral seeking our kiddos sound a lot alike! Natalie is a very adventurous eater but we've been fighting the urge to over eat because she's always wanting that oral stimulation. She chews a lot of sugar free gum and has a latex tube the OT gave her to chew on and blow bubbles through. That's my biggest concern with school starting because she probably won't be able to have that gum. Maybe I need to put a chunck of that tube on her pencils! HA!


Does your son like to swim?

Avatar for firstglimpse
iVillage Member
Registered: 04-08-2003
In reply to:
Fri, 08-20-2010 - 7:26pm

I think I have SID myself. My pencils & pen tops had to be replaced often due to chewing. So I think having stuff at the end of her pencil may not be a bad idea. Even if it's the thing that is supposed to help you hold the pencil correctly - b/c I remember my pencils being chewed on lower at the bottom b/c I didn't like the eraser part.

Have you tried a battery operated tooth brush with her? I wonder if using something like this in the morning would help fill that need for a few hours? Maybe even let her brush her gums & her inside cheeks? When I saw of the tools the OT was sending home for my son's mouth (then having us return - ugggh, I wondered about germs!) so I bought one of these brushes instead.

My son wants to love to swim. He's been in swim lessons since last October & he is still getting used to having water touch his face. Though, again, August has been huge! Starting about a week ago he started to put his face under water & on Thursday he swam on his one about 2-3 feet. We first had to tackle his ears getting wet, then his mouth, then his eyes & finally his nose.

I've let him get out of every sport he's been in - but I won't let him get out of this one. I've told him I don't care if it takes 5 years, we're not quitting swim until he can swim across the pool & swim lessons cuts into our money, so if he wants to do another sport, he's going to have to swim across the pool first. This is a safety issue. I never got swim lessons as a child & now I cannot do much around water. I hated being the kid who could not swim. So he's going to swim, it doesn't have to be pretty, but enough for pool safety.

My hope is - once he swims across the pool his confidence will soar. I've already seen many changes in him this month since he started to ride his bike. He even feel into a brier patch, came out scratches head to toe & he went back out & rode his bike. This is not a kid 3 mos ago he would avoid something for pushing against him too hard.

With my DD, not sure if she has sensory issues or if it's learned from big bro? There have been some things that seems unique to her (she has a hard time with water & is also not leveling in swim), but even if she does it is minor next to my DS. She really hates loud sounds, wind, rain & worse of all scraped knees. But her fear is nothing like my DS - if something scares her nothing on this earth will get her to do it, so I don't even try any more. But the thing is, little scares her. We took her on an alpine slide last Sunday & she was upset she was not tall enough to ride by herself & wanted us to go as fast as possible.

Not sure if my son is excited or not. He loves school, but some how I have managed to give them a pretty busy & fun summer w/o spending money ??? We've been busy almost every day and it's just passed by so quickly. He told me the other day we better start making him bored so he can start to get more excited about school. I keep meaning to, but there is this & that we still to do!

Both mom & dad are extremely shy. I never really had friends growing up and neither of us really have friends now (I do have 1 luckily). So it's shocking to us to see our kids so social. I guess it goes to show how much parents involvement does for a child's self esteem.

Nice to share w/you too. Sometimes I feel so alone. Children are either less effected or more effected. I don't think I've found somebody who seemed to share this much in common.




"Only when we are sick of our sickness shall we cease to be sick."

~ Lao-Tzu, from The Tao Te Cheng



"Only when we are sick of our sickness shall we cease to be sick."

~ Lao-Tzu, from The Tao Te Cheng
iVillage Member
Registered: 07-22-2007
In reply to:
Sat, 08-21-2010 - 6:51pm

I know what you mean! The more I read about SPD, the more I think I tend toward having it too. I seem to be a tactile avoider. I absolutely cannot stand anything on or near my neck - no choker necklaces or turtlenecks for sure! I also get really annoyed by tags and pinchy waistbands. I also cannot stand touching my pruny fingers to someone else's skin! Wet skin! Shudder! :)

We do use a spin brush for Natalie at the recommendation of her OT and her dentist. She seems to like it pretty well although that is a good idea about having her do her tongue gum and cheeks too! I'm going to have to start her on that.

By the way, she has been on the Omegas for a little over a week. I wonder if the liquid or the gummy makes any difference. Does the liquid enter the system better? She's taking the gummi now since she seemed really excited about them. But maybe I'll try the liquid next. I do see a small improvement I guess with her ability to sit still and read. I'm really curious to see how she does at school with the table work.

I agree with your stand on swimming! It is an absolutely important skill to have. I tend to not enjoy putting my face in the water either but Natalie usually spends more time under the water than above. We just spent the afternoon at the pool actually. It's nice and quiet around here right now! She's SO mellow after the pool!

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