My 17 month old SID daughter

iVillage Member
Registered: 03-31-2006
My 17 month old SID daughter
3
Thu, 08-28-2008 - 10:55pm

I have a little girl, 17 months old, and she has been diagnosed with SID since she was 14/15 months old. She first went to Speech for a swallowing disorder and she found that she had SID. She told me to see a OT that was there, when we did she couldn't believe she had SID the way she did. She did tell us that she was really glad we found it at her age. NOW...I am having problems with trying to get others to understand her and things she does and doesn't like. I keep getting told "She is a big girl, treat her like one." or "You just have to subject her to things she doesn't like, you aren't making it any better with giving in." Plus, people rolling their eyes when I say she is in OT and Speech. Plus...I am now just getting her into a developmental neurologist. No one, up til now, has told me that I should take her to one. You would think with having an autistic son, I would know these things, but I am at a loss. She isn't autistic...so I just don't know.


Ok..another question..


My dd gags when she gets anything sticky/goopy on her hands...lotion, ketchup, play-doh, shaving cream, things like that. She gets it on her hands and looks at it for a minute and then starts trying to wipe it off. When she can't get it all off and/or she thinks she still feels it she will start to gag and we have to wipe it completely off. BUT when she is in the bath, she will help wash her body and the soap doesn't bother her. I have even tried giving her lotion in the bath and she is fine with that as well....as long as she is wet. Does anyone have any idea what that could be? Also, she won't sit down in the bath...she always has to stand up.


She has other sensory problems...loud noises ( toilets flushing, vaccum cleaner, dishwasher starting, cars starting, glass breaking, disposal), bright lights, ANYTHING on her feet, anything covering her up (she doesn't like blankets, and I can't get her to sleep with one), severe seperation anxiety from mom and dad, lifting her head up (we think this has to do with equalliberium actually. She had tubes in at 10 months), water on her face, things on her hands ( like above...but there are other things...like popping bubbles), buzzing and wiggly things (like the little jumping toy, and vibrating toys).

Photobucket
Photobucket
Photobucket
Photobucket
Photobucket
Photobucket

made by andie
Photobucket
 
iVillage Member
Registered: 04-19-2006
Mon, 09-01-2008 - 12:41am
First welcome to the board, so sorry it took me so long to respond. I think we have all been told to subject them to the things they hate, but what people don't understand is how tramatic these things can be unless done carefully with the aide of an OT or specialist. I have suffered SID my whole life and now have a name for it lol. I still hate so many things I did as a child though the fear is gone, just as your daughters will be as she grows. My son who is 10, daughter who is 7 both have improved with age. My youngest also has SID she will be 2 in Nov. and has been in OT and speech since she was 10 mo. The touch and not likeing things on her hands is most likely textile and is part of SID, OT can help with that. Not too put tmi, but Nellie (my youngest) stepped in dog poop and lost it (I can't say I blame her) now it wasn't cause it was poop cause she doesn't understand yert that it's gross, but just the feel of it made her freak. Everything u listed in your last paragraph seems also to be SID related and not so much the tubes but..... I'm not a doctor. Please keep us updated on how OT is going and if you have any other questions please feel free to ask :)
Photobucket
Photobucket

 


iVillage Member
Registered: 09-27-2007
Thu, 09-04-2008 - 8:08pm

No one ever seems to get the sesnory issues.

Jessie Mommy to Gabe (5.8 yrs old ASD, CAS, SPD) and Zane (1.10 yrs old ESD)

Visit my blog

iVillage Member
Registered: 04-21-2008
Wed, 09-10-2008 - 2:51pm
Welcome to the board.

Photobucket