My son's symptoms- Would love input.

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Registered: 04-02-2003
My son's symptoms- Would love input.
8
Thu, 11-04-2004 - 12:58am
My ds was dxd w/ SPD about 3 yrs ago. I didn't treat is as I should have and looking back I realize I should have. I'm sure we could have avoided lots of difficulties.

Here are some of his symptoms- these may or may not be related to SPD. I still have much to learn.

Sensitivity to light- gets very difficult to handle in any place with flourescent lighting

Sensitivity to sound- takes a good 10 min to calm him down after a fire-alarm goes off. can't bring him upstairs in church cuz "Pastor screams". Yet he seems to feel the need to be excessively loud himself.

Tactile response is mixed- washes his hands at least twice during a meal when eating anything that does not require utensils, but will leave lolipop stickiness alone.

Other symptoms that I'm not sure if or where they fit in SPD-

Literally throws himself into doors/people/furniture/floors/etc.

Teeth grinding at night

Doesn't like having his hair brushed and is just now starting to be ok with tooth-brushing.

Sometimes he craves being picked up and held near the ceiling. Other times he'll scream if you pick him up an inch off tyhe floor. (Maybe higher is better?)

Throws tantrums that will rival any two-yr-old. (1-2-3 Magic never worked on this child and corporal punishment would only makes it worse)

He has also started to have panic attacks when brought to a new situation. (I know they are panic attacks as I often have them myself)

He has also been known to hide food under his bed. And no- I have never said, "No, Stenson. You can't eat." Though with his food stash you'd swear I was starving him.

(WARNING- THE FOLLOWING SYMPTOMS MAY MAKE YOU GAG- OR WORSE)

Holds bowels until he either loses control or has a movement that is painful. If he loses control of his bowels he will not tell (even tho he knows we won't get mad if he tells us) and then will sit there playing or whatever until my boyfriend or I notice that he has messed himself. (We both have lessened sense of smell, so it sometimes takes a while.) Sorry so gross.

Refuses washing (even after the above has happened). He won't wash himself or let anyone wash him without a fight.

I know there's more- but I can't think of them right now. Any thoughts would be much appreciated.

Amanda G.

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Registered: 09-30-2004
Thu, 11-04-2004 - 5:24am

Hi Amanda,


The first thing that spoke to me was your feeling bad or perhaps guilty about not doing anything for 3 years -- please don't beat yourself up over this -- SPD was not widely known nor recognized back then, therefore sorta swept under the rug by professionals -- I *still* find myself educating my pediatrician, dentist & eye doctor for Madison -- (my DD who was DX'd at 4 & she's now 6)..... let yourself off the hook - you still have time~.........


You know, all of the symptoms you discussed are in the book "The Out of Sync Child" by Carol Kranowitz. I haven't experienced the bowel incidents myself, but my first thought was that he had a painful move once & couldn't tolerate the sensation? Or he just plainly just doesn't care for the sensation at all. At the conference I went to the other day, the OT had mentioned she would be very open to 'bowel' questions, but nobody had one--in all honesty, it was the 1st time I heard of that being an issue - I'm sorry I couldn't be more help with that.


Your son sounds like he has gravity issues, or fear of being 'off the ground'.... it's not uncommon at all for a child with SPD to have that fear -- check out some of the threads here on the different senses & I think some of this will

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iVillage Member
Registered: 11-01-2004
Thu, 11-04-2004 - 7:02am

Hey Amanda, I too agree with Colleen, don't beat yourself up.

               

 

iVillage Member
Registered: 10-23-2003
Thu, 11-04-2004 - 5:36pm

Hi their and welcome my ds has

Lilypie 6th to 18th Ticker Lilypie 6th to 18th Ticker
iVillage Member
Registered: 11-01-2004
Thu, 11-04-2004 - 7:04pm

Just another thought on the hair brushing, my DD hates it and sometimes when I brush her arms and hands first making it a game, she does better with it.

               

 

iVillage Member
Registered: 10-23-2003
Thu, 11-04-2004 - 7:18pm
Thanks I had never thought of brushing my older son. He has some si issues like his brother. Just not nearly as bad and are manageable.
Lilypie 6th to 18th Ticker Lilypie 6th to 18th Ticker
iVillage Member
Registered: 09-30-2004
Thu, 11-04-2004 - 7:22pm

Ugh, man..


Madison has this luxurious red hair that has soft & natural curls..


but she HATES her curly hair, it's 'too puffy'.. oh dear.. you know she runs the brush in the am under water & comes out with wet hair (looking like a drowned rat).. hey, she's satisfied for she sees in the mirror 'flat' hair..


little does

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iVillage Member
Registered: 11-01-2004
Thu, 11-04-2004 - 7:38pm

lmao she is a mirror girl already?

               

 

iVillage Member
Registered: 04-01-2003
Mon, 11-08-2004 - 4:01pm
lol, Makenna is a mirror girl also and has been for some time and she's only 19 months! I know it's not just the facination with "another" person looking back at her because she will stand and look in the mirror and brush her hair and say "petty" meaning pretty. LMAO! It's my fault. She used to hate getting dressed and getting her hair fixed so I would make it as fun as possible and then say, "OH LOOK HOW PRETTY" when she was done and have her go to the mirror to make it a reward. Now whenever I finish fixing her hair (note: I only have a VERY short window of time to get it fixed, otherwise that ship sails! lol) and put her down from the changing table, she says "petty" and goes to the mirror! LMAO! I heard her in my bedroom (full length mirror in there) talking and stood around the corner to listen. She was looking at herself in the mirror babbling on and on and then out came a distinctive "petty eyes baby". OMG! LMAO!!! My MIL is always saying "you have such pretty eyes baby" (Makenna is Korean mixed and MIL is Korean). I cracked up and she spun around smiling at me and shrugged her shoulder like "what mom?" lol!

Shanna & Makenna (19 months)

www.littlemakenna.com