New to this board...not new to SPD

iVillage Member
Registered: 03-26-2007
New to this board...not new to SPD
3
Sun, 03-27-2011 - 2:37pm

Hello my name is Jen, I have been on this journey since my daughter (now 5) was a year old. It has been a long journey so far, and I'm sure I have many more bumps in the road to overcome.

Ari is now diagnosed with SPD, speech and language delay, ADHD and PDD-NOS. I have come to accept all of these diagnoses, now we are just trying to make everyday easier for her. In addition to Ari i have two boys ages 3 1/2 and 6 1/2. She will be starting kindergarden in the fall. She has been going to weekly sessions of OT since 2 1/2, and twice weekly sessions of speech since 2 1/2. She also goes to a preschool with "average" children as well as children with special needs.

She is sensory defensive, and sensitive to sounds and touch manly foods and textures some. She now has glasses for her far sightedness...

Right now my main concerns are getting her some sensory things to do at home, do a "mayer johnson" like program with her for a schedule board, keep her from leaving the house and going in the driveway/yard/cars without an adult outside, stop hoarding food, and learn things that she will need for kindergarden.

So in the next month or so i am going to sew her a sensory swing for inside and out, making different weighted bean bags and stuff like this... I have already made her a weighted blanket, and weighted baby doll.

iVillage Member
Registered: 03-23-2011
Sun, 03-27-2011 - 7:53pm
Hi! My name is Amanda and I have a 2 1/2 yr old daughter that was diagnosed with SPD a few weeks ago. This is all super new to me, so it's very interesting to hear from somebody that has been doing this for a few years. My daughter has both sensory seeking (motion/vestibular and smell) and sensory avoiding (all the others). She also has a speech delay. I have a question for you. Isn't hyperactivity part of SPD? Why the additional diagnosis of ADHD?
iVillage Member
Registered: 05-02-2004
Sun, 03-27-2011 - 9:07pm
From my own son, the diagnosis of ADHD, if treated in the traditional manner, would have resulted in a kid on medications who would not have been helped by them. My son's sensory issues stemmed from double vision due to poor muscle control. Treating his eyes meant that he no longer had to move to see things "normal" so much of the H in ADHD went away. Still some impulse issues, but they may be from 8 years of not seeing normal. My son also has speech issues and has come a long way with the help of therapy.
Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Tue, 03-29-2011 - 2:33pm
Hi Jen, I just wanted to welcome you to the board! I really hope that you make progress with her over the next few months, it sounds like you have a good plan going forward.