New here...

iVillage Member
Registered: 07-06-2007
New here...
7
Wed, 07-14-2010 - 3:02am

Hi,
I'm Annie. Mom to Mackenzie Rose...a lovely little 21 month old girl. She was born at 34 weeks and has had difficulty thriving and really has had us on a roller coaster. Right now, we're on a high and things are manageable. As many of you know it changes very quickly.

We met with a psychologist today to discuss our concerns about her aggressive behaviors, excessive hair pulling (out), oral aversions, etc and she was so glad we are seeking help because she saw many behaviors in our 1.5 hour visit which she noted as sensory seeking behaviors. She referred us to an OT who works with sensory kids. We live on an outer island in Hawaii so help is difficult to get and we have to wait until they fly to us.

Anyway...it is nice to finally be on a road that might lead us to some tools to help us help her. I recognize some of you here from other boards and appreciate finding another source for information.

Annie

iVillage Member
Registered: 07-06-2007
In reply to: annieg99
Wed, 07-21-2010 - 4:29am

Caren,
Thanks so much for the link to the OT's here. One of the hospitals is the hospital where she was born and that we continue to go to. She has been seen by a SLP there but the OT was ill that day (wouldn't you know). I will check it out once we see the OT assigned to us by Easter Seals. So far all of our visits have been free which is nice.

Mack is a tip toe walker too. "They" want us to keep her in her boots all the time to help keep her feet flat and to avoid issues with her arches and tendons. It has been a challenge.

Thanks again!
Annie

iVillage Member
Registered: 07-06-2007
In reply to: annieg99
Mon, 07-19-2010 - 1:55am

Caren,
I'm doing good,thanks. Had a fabulous summer. I kept Mack in daycare 3 days a week to avoid the re-transitioning so I had 2 days a week with Fiona. We've been at the beach, swim lessons, gymnastics, and all kinds of other stuff. I really love her age. She is so much fun. I have 9 more days until I'm back at school and she starts kindergarten. Amazing how fast time goes.

The thing I battle most these days is worrying about every little thing. I can't figure out if Mack's ticks are part of being almost 2 or if they are other issues. The tantrums and severe preferences are interesting. We're getting through them. I hear the OT will be here soon. I'm not pleased with the OT we are with now. I feel like I know more from my studies than she does. Where I live is very limited. I feel bad sometimes that we are not on the mainland.

She is walking now. Also got a CP diagnosis from her ped. and as her steps develop, I see more and more that her gait is different. It doesn't slow her down much. She trips a lot and will hopefully be fitted for inserts or braces soon. Doc wanted to wait until she was walking. Shriner's comes here 2x a year and they couldn't see us in August. So unless I fly her to Oahu they won't see her until Feb. She has to have a little surgery so we'll probably pair it with that trip. Travel with her is so difficult. Luckily the flight is only 20 minutes but I always go alone it is a big day for us without a nap!

Give your JB a hug for me. I hope all is well for you. Summer going well? I will keep checking in here. I've already seen people posting things that really hit home.

aloha,
Annie

iVillage Member
Registered: 07-06-2007
In reply to: annieg99
Sat, 07-17-2010 - 8:56pm

Hey Caren,
I've started to read The Out of Sync book and was notified yesterday that the Sensational Kids book is finally here on-island. I find it very interesting as it is something I have really no experience with. Well, lots of experience with...just in the dark about it I guess. Actually as a teacher, I have seen some things that I think may have helped me with previous students.

Hope you are well.
Annie

iVillage Member
Registered: 09-12-2008
In reply to: annieg99
Wed, 07-14-2010 - 9:25am

Sorry your little one is experiencing difficulties. It's not easy to watch as a parent. But on a brighter side....it's great to have you here. This board tends to be on the slow side, but I have noticed there are more people heading over here. Maybe all the new people will give this board the boost it needs...and the attention it deserves. Sensory processing disorder is a real thing...and can be very hard to manage. As a parent with a child who also suffers from sensory issues....it's great to be able to go somewhere to vent frustrations, celebrate achieved goals, and get new ideas on how to better help our kiddos.

Hopefully you will see a difference in your LO once OT starts. Keep us posted...and if you have any questions at all...please feel free to ask.

Have a great day.



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Jessie mommy to Gabe(5 years ASD/CAS/SID)and baby Zane (1 year old)



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