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iVillage Member
Registered: 04-06-2005
New Here...
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Sat, 11-15-2008 - 10:52pm

This past year has been tough for my family. I have three children under three (34 mos, 16 mos and 9 weeks). At first we thought that my oldest DS was just acting out or doing his "terrible twos" thing. But as the months past, things started to get worse. The most confusing thing was that the behavior did not happen all the time, so I could not attribute it to just one thing (I have since read that symptoms that come and go can be a symptom of some neurological issue, such as SPD).

At 1 his daycare complained that he would not sit still and would not remained seated for meals and activities. I was told I had to do something about it but failed at every attempt. At age 2 when we noticed his toe walking wasn't going away. We were told not to worry about it although he also loved to play with doors and light switches. Then havok...bouts of energy...taking off our clothes...running around yelling...peeing on the floor (although potty trained). During these times it is as if he cannot hear you and he is taken over by some other force.

I finally decided to contact my friend who is an OT specializing in Autism/ADHD. She said we had reasons to be concerned. What's more, the quirky behaviors I was told not to worry about (having to close doors when open, always having to being a toy up or downstairs, etc.) were becoming red flags to her. In addition, she asked about textures and I told her although he does not freak out, he becomes uncomfortable in jeans or khakis having to take them off. he complains the clothes to sometimes bed sheets are cold or wet even when they are not. He tells me he does not feel good when he wants to take off his clothes. I do not see these issues with sweats, unless he gets a cuff wet when washing his hands. Repeats conversations, phrases, etc. I could go on. My friend said we could be dealing with HFA, ADHD, SPD, OCD, Tourettes or a combination.

So as of right now, I am waiting for an evaluation and getting lost in the system. It is hard to get a hold of people, get appointments (the only developmental pedi we have here has a 2+ year waiting list). I have a county eval in 2 weeks and meet with a neuro beginning of January.

My mother tells me there is nothing wrong with him...and that may be, but I need to be proactive about this. Perhaps some of these symptoms alone may be normal for kids his age, I am more concerned that he has so many of them grouped together.

I am at the beginning of the road, ready to take a very long journey. I feel alone at times, discouraged, to blame, you name it. I am trying to refocus my energy on getting him assistance b/c something in my heart just does not feel right at times. I am open to hearing some words of wisdom from you all if you have anything to share b/c I feel lost at times!

iVillage Member
Registered: 09-27-2007
In reply to: bebemakes3
Sun, 11-16-2008 - 7:05pm

(((Hugs))) I think you have every right to be concerned about your son.

Jessie Mommy to Gabe (5.8 yrs old ASD, CAS, SPD) and Zane (1.10 yrs old ESD)

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iVillage Member
Registered: 04-06-2005
In reply to: bebemakes3
Sun, 11-16-2008 - 7:47pm

Thanks...

At what point did you sense something may not be right? I remember he would to sleep through the night until 11 months. He would cry non stop and ALWAYS had to be held. The first few months my DH and I had to take turns sleeping in a chair holding him. We tried letting him CIO but he would never stop. To this day he still has sleep issues, doe snot stay in bed and always ends up with us no matter how many times we put him back to his own bed. I have given up b/c he shares a room with his DS and wakes her up.

Since birth I had a feeling, but felt guilty for saying something could be wrong with him. At first I thought maybe I just needed to be more patient. Family, friends and docs/pedis always (and some still) said nothing was wrong.

Also, are you saying the cheese causes the stimming?

iVillage Member
Registered: 10-27-2004
In reply to: bebemakes3
Mon, 11-17-2008 - 1:57am

Hi!


You are being a great mom trying to get your son evaluated and helped.

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iVillage Member
Registered: 09-27-2007
In reply to: bebemakes3
Mon, 11-17-2008 - 7:39am

It is only in hindsight that I realized Gabe was always a little quirky and not like other babies.

Jessie Mommy to Gabe (5.8 yrs old ASD, CAS, SPD) and Zane (1.10 yrs old ESD)

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iVillage Member
Registered: 01-13-2008
In reply to: bebemakes3
Tue, 11-18-2008 - 2:39pm

ha my daughter at age one enjoyed running while holding a pillow over her face!! her "then" dr said she was just a quirky daredevil ! ha i wanted to slap him!!!


thank goodness u had a friend in the field that could help direct u in the right path! good for u for listening to your gut!! best of luck with the up coming evals!