Find a Conversation
|Sat, 11-15-2008 - 10:52pm|
This past year has been tough for my family. I have three children under three (34 mos, 16 mos and 9 weeks). At first we thought that my oldest DS was just acting out or doing his "terrible twos" thing. But as the months past, things started to get worse. The most confusing thing was that the behavior did not happen all the time, so I could not attribute it to just one thing (I have since read that symptoms that come and go can be a symptom of some neurological issue, such as SPD).
At 1 his daycare complained that he would not sit still and would not remained seated for meals and activities. I was told I had to do something about it but failed at every attempt. At age 2 when we noticed his toe walking wasn't going away. We were told not to worry about it although he also loved to play with doors and light switches. Then havok...bouts of energy...taking off our clothes...running around yelling...peeing on the floor (although potty trained). During these times it is as if he cannot hear you and he is taken over by some other force.
I finally decided to contact my friend who is an OT specializing in Autism/ADHD. She said we had reasons to be concerned. What's more, the quirky behaviors I was told not to worry about (having to close doors when open, always having to being a toy up or downstairs, etc.) were becoming red flags to her. In addition, she asked about textures and I told her although he does not freak out, he becomes uncomfortable in jeans or khakis having to take them off. he complains the clothes to sometimes bed sheets are cold or wet even when they are not. He tells me he does not feel good when he wants to take off his clothes. I do not see these issues with sweats, unless he gets a cuff wet when washing his hands. Repeats conversations, phrases, etc. I could go on. My friend said we could be dealing with HFA, ADHD, SPD, OCD, Tourettes or a combination.
So as of right now, I am waiting for an evaluation and getting lost in the system. It is hard to get a hold of people, get appointments (the only developmental pedi we have here has a 2+ year waiting list). I have a county eval in 2 weeks and meet with a neuro beginning of January.
My mother tells me there is nothing wrong with him...and that may be, but I need to be proactive about this. Perhaps some of these symptoms alone may be normal for kids his age, I am more concerned that he has so many of them grouped together.
I am at the beginning of the road, ready to take a very long journey. I feel alone at times, discouraged, to blame, you name it. I am trying to refocus my energy on getting him assistance b/c something in my heart just does not feel right at times. I am open to hearing some words of wisdom from you all if you have anything to share b/c I feel lost at times!