New here and I am soooo confused....
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|Thu, 12-02-2004 - 9:40pm|
First of all please excuse the hat....don't want to offend I just couldn't get the darned thing off tonight... :(
I have a 9yr old ds and he is my life. I love my son more than words can say but am sooo worried about him. I've read and read and read for the last five years and have yet come across something that made me sit up and say "yes" that's it. I've read a great deal recently on SID and must admit that some of the "symptoms" exist but not all. But then that's the way it's been for the last five years. His dr is hesitant to make a diagnosis and every "specialist" I've had him to waffles on a dx. He exhibits some of this, some of that, a little of this and a little of that. As I am sure you all know I cannot begin to get him accomodations in school without a dx.
Reading on SID has brightened the bulb a bit but it's not totally on (as usual)so I thought I'd come here and ask the experts some questions. DS as an infant and toddler was terrified of loud noises in fact I use to come home at lunch time to vacumn lol...anything like a motorcycle, loud car etc scared him. He also had a keen sense of smell, he had to smell absolutely everything even socks...yuk!! Then as he aged a bit I'd say around Kindergarten age he began having night tremors and certain fabrics would make him break down and sob. In fact he still cant stand to touch my work coat. He exhibits a few of those things today at age 9 but not as bad as when he was little. He learned to talk very early and in fact when tested in Grade 1 his language skills were "
too high to quantify." He is an avid reader, has always read well above grade level. He is a very active boy will do cartwheels in the living room etc. and yes he is impulsive. Like other posters he also potty trained very late. Also, like some other posts I've read, I had a piece of cake pregnancy (even though I was 42yrs old and he is my first and only child) but I did have an emergency C Section. The chord wrapped around his ear and they lost his heartbeat. DS tests in the 83 to 87th percentile on the cogat.
Which brings me to the root of the problem. In a one on one situation or in a testing environment he is awesome but put him in a classroom and he crumbles. He simply cannot perform in the classroom. Is easily distracted, lacks focus, etc etc etc I think we have all heard those "buzzwords." As usual I am being pushed by the school but I'm not budging, as usual, I don't know why in the world they want to medicate every kid that presents a challenge. Do I think he is ADHD? Not really although he does exhibit "some" signs but not enough to qualify for a dx....I will be upfront here that meds to me is a very very last resort...he has friends but has never been able to really "keep" a friend very long. He lacks social skills even though he has been in social environments since he was a baby. He is very immature I guess, although I'm not quite sure just how mature we can expect a 9yr old boy to be.
I am sooo very confused and it kills me to watch this bright, capable, funny, affectionate little boy suffer the way he is. We started some testing this week at a place called NeuroEductation. Very extensive testing over a period of several appointments and the Dr seems confident that we can get to the root of the problem.
When I began reading about SID....A glimmer of hope emerged that maybe just maybe I had finally stumbled across something....based on what I've told you and given your experiences what do you think?