New here, DS was diagnosed with SID..(m)

iVillage Member
Registered: 03-27-2003
New here, DS was diagnosed with SID..(m)
Mon, 07-21-2003 - 2:33pm
about a year ago. His main issue is feeding and touch(he hates it when anything besides clothing touches his arms and he won't let you touch his face at all). From about 6 months to 12 months he absolutely refuses to eat anything and lived on liquids alone. From 12 to 16 months he ate like a dream, but at 16 months he abruptly stopped eating and has since lived solely on a liquid diet consisting of mainly Pediasure with some added calorie boosters. He sees a feeding therapyst weekly and a nutritionist monthly. He has had every test in the book done to rule out everything from reflux, which he does suffer from on occasion, enlarged adnoids or tonsiles, which he did not have. Slow gasteric empting, which he does have a slight problem with and has even had a CAT scan to rule out any possibles issues there, which thankfully there were none. We (the FT an Nutritionist and I are starting to believe that his feeding issues stem from teething pain that is intensified by his SID. He started teething at about 6 months and got all of his teeth except his second year molars by the time he was 12 months old. He then started to get his second year molars at about 16 months (which was 4 months ago). At this point his 2 bottom 2yr molars are in and his 2 top are about to cut through.

I guess I am just wondering if anyone else has noticed any significant changes in feeding when their SID child is teething. I wouldn't be so worried if he was just refusing to eat the really solid foods, but he won't even take the really soft or liquidy foods either, like ice cream. He's started to lose weight again, which is not good since he's already very underweight for his age. I should mention that he has a twin sister who has never had any SID issues. She refuses to eat too, but she's just a picky eater. Besides those chubby thighs of hers are a fairly good indication that she's getting enough anyway.....

If anyone has any suggestions, I would really appreciate them.

Antonella, very frustrated and worried mom to Alianna and Ashton (SID), 11/13/01

iVillage Member
Registered: 04-14-2003
Tue, 07-22-2003 - 12:27am

My dd (26 mos) also has SID, however she was not AS sensitive with the eating. The transition to table food was very difficult for her, and she is still extremely sensitive to food textures (this has also gotten a bit worse over the last 6 mos). She will not eat most fruit because of textures (i.e. bananas are too fuzzy for her) and she will not eat anything that sticks to her teeth. My dd is also low on weight (although she's very tall), and my dr is constantly telling me to feed her more, more, more and believe me, I try at every opportunity.

My main reason for posting was to let you know that my dd is a horrible eater whenever she is teething -- she too can live on fluids alone at these times. Also, my dd had hand, foot, mouth disease about 3 mos ago and her mouth was full of ulcers. At that time, she lived on fluids only and because it was so painful for her to eat, we had a heck of a time getting her back on solid food (she was petrified to eat anything). Keep in mind that my dd can talk so at least she was able to tell us this. In your case your ds is going through so much with the teething at a young age, and he's not able to properly communicate this to you as well.

One thing that worked really well for us was baby cereal (i.e. pablum). When dd was ill I convinced her to try some pablum (I told her it was very soft, I used to make it really runny) and she started eating this 3-5 times a day (it was the only food I could get in her). It really helped with her weight because it's full of nutrients and as she got better, I just started making it thicker and thicker to get her used to the texture. It might be worth a try with your little guy.

Anyways, best of luck and keep us posted.