about a year ago. His main issue is feeding and touch(he hates it when anything besides clothing touches his arms and he won't let you touch his face at all). From about 6 months to 12 months he absolutely refuses to eat anything and lived on liquids alone. From 12 to 16 months he ate like a dream, but at 16 months he abruptly stopped eating and has since lived solely on a liquid diet consisting of mainly Pediasure with some added calorie boosters. He sees a feeding therapyst weekly and a nutritionist monthly. He has had every test in the book done to rule out everything from reflux, which he does suffer from on occasion, enlarged adnoids or tonsiles, which he did not have. Slow gasteric empting, which he does have a slight problem with and has even had a CAT scan to rule out any possibles issues there, which thankfully there were none. We (the FT an Nutritionist and I are starting to believe that his feeding issues stem from teething pain that is intensified by his SID. He started teething at about 6 months and got all of his teeth except his second year molars by the time he was 12 months old. He then started to get his second year molars at about 16 months (which was 4 months ago). At this point his 2 bottom 2yr molars are in and his 2 top are about to cut through.
I guess I am just wondering if anyone else has noticed any significant changes in feeding when their SID child is teething. I wouldn't be so worried if he was just refusing to eat the really solid foods, but he won't even take the really soft or liquidy foods either, like ice cream. He's started to lose weight again, which is not good since he's already very underweight for his age. I should mention that he has a twin sister who has never had any SID issues. She refuses to eat too, but she's just a picky eater. Besides those chubby thighs of hers are a fairly good indication that she's getting enough anyway.....
If anyone has any suggestions, I would really appreciate them.
Antonella, very frustrated and worried mom to Alianna and Ashton (SID), 11/13/01