New here-Oral sensory disorder????

iVillage Member
Registered: 10-16-2007
New here-Oral sensory disorder????
6
Sun, 07-11-2010 - 12:33am
Hi, just found this board.

haven-1.png picture by iamcubanb

iVillage Member
Registered: 09-12-2008
Sun, 07-11-2010 - 7:10pm

Hello and welcome to the board. I posted a response to you on the speech board, but I still wanted to welcome you on here.

It does tend to be a little slow on here, but like the PP...the gals on here are a great wealth of knowledge.



Jessie mommy to Gabe(5 years ASD/CAS/SID)and baby Zane (1 year old)



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Jessie mommy to Gabe(5 years ASD/CAS/SID)and baby Zane (1 year old)



Visit my blog


iVillage Member
Registered: 04-07-2003
Sun, 07-11-2010 - 10:16pm

Hi-
My daughters oral sensitivity is not even close to your daughters, but I wanted to ask if you have tried Occupational Therapy yet or a sensory gym. Your daughter looks young in the photo, so I am not sure if she is still too young for that, but OT helped my daughter with so many different sensory problems. We also used a z-vibe for a while to try and desensitize her, but it really didn't work well for her. Kaia's issues are more mixed textured foods, and that she has her set foods she will eat and will not try anything new.... even chocolate, amazing enough.

Alison

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iVillage Member
Registered: 10-16-2007
Fri, 07-16-2010 - 5:28pm

Thanks for your post Alison.

haven-1.png picture by iamcubanb

iVillage Member
Registered: 06-30-2010
Mon, 08-02-2010 - 4:04pm

I just watched a webinar today and got a LOT of ideas in terms of sensory stuff in my head.

iVillage Member
Registered: 08-02-2010
Wed, 08-04-2010 - 7:41am
Hello. I totally feel your frustration. My son, now 12, had a very similar situation. He never chewed food. He would eat pudding cups and lick french fries, but never chewed anything. We took him to therapy twice a week, went to different doctors, begged people to help us. He was born big and didn't have trouble gaining weight because he would drink lots of milk and eat lots of pudding so most doctors didn't even believe us that he didn't eat food that required chewing or had texture until they received reports from occupational therapists. Doctors just didn't know how to help. It was awful. We drove from Michigan to Virginia to check out a program where he would have stayed one month, but it was a lot of money and didn't seem the right fit for his needs. Then, I was referred to a closer hospital when he was age 7 where he was supposed to stay for two weeks. It is an intensive feeding program. They were so great at tackling his fear, although it was hard and he vomited on the first day and I cried a lot that week, that he only had to stay for one week and we went home. However, he's still pretty darn picky and scared to branch out to new foods, but he chews. He eats spaghetti, pizza, corn dogs, apples (peeled and cut small), french fries, cheese burgers and more, but not the vegetables that I'm looking for him to add at this point. He's resistant to change and hates trying new textures. I just want you to know that you are not alone and it is a frustrating journey to have a child with oral sensory issues. I thought we'd never find help. I hope you find the help you need and if you have any questions, I'll help in anyway I can.
April