New here...looking for any SID info

iVillage Member
Registered: 04-20-2010
New here...looking for any SID info
3
Tue, 04-20-2010 - 12:47pm
My 3 yr old son was DX FTT at 6 months due to feeding problems.
iVillage Member
Registered: 09-12-2008
Tue, 04-20-2010 - 9:31pm

The PP gave you some great information. Also, are you on the tube feeding board here on ivillage? A lot of children who are tube fed struggle with oral aversions. How is your sons speech? A speech therapist may also be able to help you with his eating needs. How often is he tube fed? And when did you start solid foods with him? It may take some time for him to "learn" how to eat solid food. I don't know where you are from, but a great place to start looking for help with feeding issues due to using a g-tube is your university hospitals. I live in PA and there is a great center in MD called Kennedy Krieger. They have an autism center and they have a feeding clinic.

What kinds of therapy is the OT doing for your sons oral issues?



Jessie mommy to Gabe(5 years ASD/CAS/SID)and baby Zane (1 year old)



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iVillage Member
Registered: 03-25-2003
Tue, 04-20-2010 - 10:34pm

hello. My K is only 2. We have known she has sensory issues, but there was a waiting list for the OT. We did what we could and then a couple of weeks ago, I got the call she had an opening and could come check out K.

I have been reading the Out of Sync Child book. And K is now seeing an OT 2 times a month for now. She is sensory seeking. We do brushing and compressions 3 times a day. She also has a compression vest and a weighted blanket.

Your talking about eating issues, does he have a Speech/ oral therapist? K has an e-val by them. She watched how K ate different foods. She is still drooling, so we though there might be something orally wrong. But it seems to be more Sensory. But you might want to look for some one like that. Maybe they can give you a better path. Good luck.

Sarah, mom to Alexis, Samantha and Kayleigh


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