New & need input please

iVillage Member
Registered: 03-30-2005
New & need input please
4
Mon, 06-28-2010 - 1:26pm

Hi everyone!! I didn't even notice this board was here & had posted on the Asperger's board & was directed over there by the friendly people there! :) This may be long b/c I just want to get everything in, so bear with me!

I have a half-brother who has Asperger's so some things about my son started to concern me when I noticed he has a few behaviors that my half-brother also has. He does not seem to fit into the ASD category though, so now it is starting to look more like sensory issues if anything.

Okay, so Isaac is now 3 yrs old. Background is that he was the perfect baby up until around 2. He rarely ever cried and was just SOOOO laid back, go with the flow. He didn't even cry for shots. He met all his milestones fine... walked, talked, communicated fine. He is affectionate, he looks you in the eyes. He talks to others and is very friendly.

At around 2 is when things started going bad and we have always just attributed it to the "terrible 2's". He started having sleeping issues. He sometimes takes an hour or more to settle & go to sleep. Sometimes he has gone to bed screaming until he has finally fallen asleep. About half of the nights he ends up coming into our room & falling asleep on the floor beside our beds.. then we find him in the morning. We have been very consistent with bedtime & it has gotten better, but it goes week to week... some good, some bad. Eating has been a major issue. He always just refused to eat much. Just always thought it was normal pickiness. Getting him to even eat half of a meal has been a challenge. The doctor recently started him on some reflux meds b/c we thought maybe it was caused by that... maybe have seen a little improvement. He doesn't seem to be very sensitive to any type of touching or textures. He doesn't mind clothes rubbing him or people touching him. He is clumsy and is my accident-prone child. Only every now & then does he not want to touch something, like this morning he didn't want a doughnut b/c it was sticky. Other than that he doesn't mind getting dirty or sand on him or anything like that. He can throw a bad tantrum, but nothing that I would consider to be extremely bad. He is very stubborn & defiant. He has a hard time hearing "no" from us. He can be rough when playing, but we've always been told that boys are just like that. He sometimes hits but again nothing more than a normal boy from when I've heard.

He has some mannerisms which were my first cause of concern & that triggered me to think something was a little "off" with him. He flaps his hands. He also does this staring with his mouth open thing and shuddering thing. He does it when something excites him or if he has to focus on something. I have also caught him doing it to his own reflection. He also has walked on his tip-toes some, but only once in a while. He sometimes walks with his arms kind of held out to the sides & his fingers spread open... like his arms don't just swing freely by his sides, but again this isn't all the time.

I have noticed more of his behaviors when he is around other kids b/c they don't do the same things & so it sticks out to me. The stimming behaviors are when sent up a red flag to me... the other stuff I have always attributed to just normal toddler stuff. So I'm just looking for input... where should I go from here? I mentioned the hand-flapping to the doc before & she just didn't think there was anything to be concerned about, but I am concerned.

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iVillage Member
Registered: 03-30-2005
Tue, 06-29-2010 - 8:00am

Thanks again Caren! I keep thinking more & more about things I see with him & trying to put it all together. A journal would be wonderful idea.

I guess another question I have is... Isaac functions really good how he is & we haven't run into any really major issues yet. So do we pursue things or do we just see how things go? What kinds of things to they do with OT to help them out? Not that it's been easy, but I feel like we have worked through a lot of the things that have been difficult for him, but maybe we would have known better how to handle things if we had advice from an expert?

I am definitely going to be at the library this week to look for those books! I want to find out as much as possible so that when we do see the doc I am armed with knowledge!! We live in a very small town & so it worries me that maybe they don't pursue these things quite as aggressively here... kind of felt like the doc wrote off my concerns rather quickly when I mentioned them to her several months back.

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