New to this...

iVillage Member
Registered: 03-23-2011
New to this...
14
Wed, 03-23-2011 - 1:01pm
I am new to this message board and new to sensory issues. I had never even heard of sensory processing disorder until I was told my 2 year old has it. We knew she was very particular, and tantrums easy and over odd things. She also a significant speech delay. We had been taking her to speech therapy for a little while, when the therapist started asking a bunch of what seemed like odd questions. But the answers were all yes, my daughter does that! How did she know?! Then she said there were several "red flags" with my answers and suggested she get an evaluation from an OT. We did this, and now they are saying she has Sensory processing disorder and possibly on the autism spectrum. some of the the things she does: she will not get messy. No sauce, glue etc on her at all. She walks on her tiptoes while barefoot, and then tantrums til I wash her feet. She sleeps with loud white noise, and 2 heavy blankets plus stuffed animals on top of her. She screams bloody murder when cold. She has a very hard time with noise (unless she is the cause). She pulls on her cheeks til her bottom eyelids are stretched out (think like the home alone kid, but pulling her cheeks down as far as they go, until they bruise) she does not know how to pretend, and has never done imaginitave play. She is 2 and a half years old. She HATES wind of any sort. Crowded places make her anxious. She hates grooming of any kind. We took her to the dentist yesterday and it took her an hour after we got home to calm her down. We have to go back today because there was an issue with one of her teeth. It's a two person job to brush her teeth. She acts like it's torture. I'm not surprised one of her teeth is bad. That makes me feel horrible. We brush her teeth daily, but can only get them so well when she's screaming. :-( we vacationed at the beach. The sand, wind and cold all together was horrible for her. Ugh I could go on. Does this sound like what any of you are dealing with? Oh and one more... Bath time... That's rough. She LOVES playing in the water. However if she sees ANYTHING floating in the water (a hair, fleck of dirt etc) she screams "OW" and tantrums. I have to wash the tub before every bath. Then the water has to be warm. Slightly cold =tantrum. Then actually washing her is torture. But if we keep it clean and warm and not touch her, she could stay in there forever!
Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
In reply to: akw123
Wed, 03-23-2011 - 4:00pm
(((HUGS))) I'm sure you are feeling overwhelmed right now. I think that the other members will be able to relate to a lot of what you are describing. Will she be working with an OT on some of them?

I hope that you'll continue to find support here, it helps to have a place to talk and vent about everything.

iVillage Member
Registered: 03-23-2011
In reply to: akw123
Wed, 03-23-2011 - 4:52pm
Thank you. I AM feeling overwhelmed. she starts OT tomorrow, and will go once a week for an hour. She also will continue with her speech therapy every week for an hour. Then we are waiting on a call back to schedule her for an appointment with a developmental pediatrician. I have so many questions and fears, and not many people to talk to. I have a huge support system, but for some reason my family is having a hard time accepting this. They say it's hogwash, and she is fine and quirky. Were not close to my husbands family. Then the people that are trying to be supportive, nobody has ever even heard of this! Its a pretty lonely, overwhelming, stressful situation.
Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
In reply to: akw123
Wed, 03-23-2011 - 5:20pm
I'm sorry that your family is not being supportive, hopefully once they see how much the OT helps they will be more receptive. I think it's hard to see there is an issue when you aren't the one that has to deal with it every day.

I'm so glad that you have her in OT and ST already, it's amazing how well early intervention works. I hope you can get in to see the pediatrician soon, I'm sure having some answers will help. Let us know how it goes!

iVillage Member
Registered: 03-23-2011
In reply to: akw123
Thu, 03-24-2011 - 1:00pm
I keep crying. Before I made a post, I read a lot of the posts, and just cried. A part of me still believes that nothing is wrong. It's that part of me when she has a really good day, or when I see her stick the tip of her finger in sauce for the first time. I say to myself "see! See! They're mistaken!" but those moments don't last. When I was reading the other posts on here they all sounded very similar to my daughter. It breaks my heart that she hates it when I kiss her. Then I have fears that the OT, or the developmental ped will get her on a good moment and tell me that she is fine and doesn't need therapy when I see how clearly she does. Im just stressed I guess. But reading your replies to me... Thank you. You don't know how much it means to me to have somebody understand how I feel. (or you do and that's why you post...) You explained it to a T. I have lots of questions for you if you don't mind. Or anybody else that would like to reply, feel free! I'm in a lonely spot with this at the moment. But for now, Abby has her first non-evaluation, actually going to do stuff OT appointment. Wish us luck!
iVillage Member
Registered: 05-02-2004
In reply to: akw123
Thu, 03-24-2011 - 11:42pm

To quote Charlotte, from "Charlotte's Web", "Chin up!"

iVillage Member
Registered: 03-23-2011
In reply to: akw123
Fri, 03-25-2011 - 12:46am
Caren,
I will check those books out next time we go to the library. Thank you! I appreciate what you said about the journal. I'm going to try that too. Also, at her OT today, the therapist told me that it would be hood to stimulate her in the way that she seeks when she is overwhelmed. She kept calling Abby a "vestibular seeker". I guess that explains why Abby is constantly going and craves huge movements, with lots Of pressure. She loves jumping, swinging, crashing into things, falling off of things, etc. Even as an infant, one of the things that was sure to calm her was being tightly swaddled, and to put her in her carseat and swing the cardeat around. Did you notice things like that since birth with yours? Now, when she gets overwhelmed, we rock together. She wants it silent in the house, and she wants me to hold her tight and rock her in the chair. We do this several times a day. If I try to sing, or hum, or stroke her face, she gets upset. Honestly I enjoy that time. She's not big on cuddling, so I gladly rock her, and cherish that time greatly. Her OT today said it would help her to create more times for her to have that vestibular stimulation safely through out the day. I asked her wouldn't that be fueling the fire? And she says no, that her body seeks that for a reason, and we should feed that. She said that it will help her. So that's the plan. It was great though, we squished her in this huge pillow and flung her back and forth. Abby LOVED it. Her therapist seemed good. She made her do something challenging, then something satisfying. For example play in beans for a little bit, then swing her around on the swing, get her to play with chalk, then go down the slide a few times. It was great. I had noticed before that if she is engaged in those types of activities, she does better at dealing with the things she typically avoids.
About the mourning, then warrior mom... I believe you. Lol I'm in such a crazy place emotionally right now. I read the part where you said she's "special needs" and had to stop reading and come back later. It just was a hard phrase to swallow, and I guess I better get used to it. I'm eager for warrior mom to show up. Haha well I will respond to your other post tomorrow. I'm exhausted.
iVillage Member
Registered: 05-02-2004
In reply to: akw123
Fri, 03-25-2011 - 8:11pm

Another thought, that will hopefully cheer you some because you are doing the right thing right now.

iVillage Member
Registered: 03-23-2011
In reply to: akw123
Sun, 03-27-2011 - 7:40pm
So my local library had "out of sync child" but not sensational kids. I have been reading that, and it's answered a few questions. Some questions you ladies may have answers to: does her inability to handle cold have anything to do with this? Cold is painful to her.
Would she handle some things better with dad, and some better with me? He has better luck getting her to wash her hair without too much tantruming (most days... As I type this, she is screaming bloody murder while he's washing her hair.) then there are some things she handles better with me.

Lately she has been avoiding light. Camera flashes she covers her eyes and says "DOP! EYES OWIE!" which translates to "mother, may you please cease flashing that light in my eyes, it is painfully bright." lol then outside Shes been covering her eyes and saying owie. Is this part of it too? Why on earth would she just in the past few weeks begin avoiding light? (she is 2 1/2 -- 29 months to be more accurate)

I am remembering so many things, ever since birth pretty much that seemed odd, but would be explained by this. Does this start at birth then get more pronounced later?
iVillage Member
Registered: 03-23-2011
In reply to: akw123
Mon, 03-28-2011 - 1:00pm
Wow... This is real, isn't it. She really has this. Why do I keep expecting to hear that she is nothing like this, that she is "normal" and that we're all wrong? Why am I surprised every time I read something and it sounds exactly like her?