OT eval.- Long post

iVillage Member
Registered: 03-31-2008
OT eval.- Long post
8
Tue, 05-06-2008 - 1:44pm

My ds just turned 8. I have been saying he has sensory issues since at least age 2. We have been to 3 different counselors and 2 psychiatrists. He has alot of things going on psychologicaly. Every time I mentioned SID they would just say OT handles that. Yes I knew that but getting anyone to refer was a problem.


He runs into things purposely, use to crawl into things when baby, tags, socks, and he sleeps on boards and needs to be wrapped tightly. He can not get an oz. of anything sticky on him anywhere. If it sticks its out of the question, no mud, finger paints, well you all know. I was told by 1 counselor last year that school has to test if i ask. well my school had a few things to say and it certainly wasn't bending over bkwords to help in any way. His teachers this year just like last claim they see nothing along those lines, so that did not help.


I could't even get his ped. to agree to get an authorization for him last year. So this counselor which is spacy and doesnt listen I kept bringing it up and asking him until he said yeah OT would test and you could do that. So I tell my ped. how the counselor thinks its a good idea. So finally got the referral.


I loved the OT lady the first day. he indeed seek deep pressure, but she didnt touch the subject of textures. he tested about 2 years behind in fine motor, but she said that isnt that far behind. yeah well I can't read his writing and school just says he needs to slow down, its not fine motor, its his ADHD. But they said that bf i had proof to show them.


I asked at the end of the second session about textures, so the 3rd time she said he didnt react to anything. I said i dont mean moon sand, and dry beans, or silly putty, i mean if it sticks to him. So all she did was say, thats behaviorial, and heres papers to work on at home for fine motor, and heres papers to do at home for the deep pressure he is seeking. Like heavy work stuff. oh and no need to come bk. he really needs to be in counseling bc his sensory is behaviorial related. What? All the counselors we saw said we should talk to OT, and she says he needs counseling. He has been in and out of counseling since age 3, so 5 years now. So people are passing us around.

iVillage Member
Registered: 03-31-2008
Fri, 05-16-2008 - 12:59pm

We were unable to get an IEP at first bc he hs NO issues at school with learning. But then he got an awsome audiologist and found he has CAPD and hyperacusis (hears everything very loud).


So bc of the CAPD they had to do an IEP. They said he didn't qualify for an IEP bc he is still able to learn w/out CAPD accomodations and the OT report I gave them does not show a big enough need to have OT in the school.


We do have a 504 plan, better than nothing, but do they really follow it? not exactly, but I can at least hold it over their heads if I choose too bc by law it has to be followed.


Our school is unwilling to do anything unless it gets to be a concern in the room.

iVillage Member
Registered: 05-16-2008
Fri, 05-16-2008 - 12:41pm

Hi,


I kind of understand what you're going through. Went out on our own and saw a developmental pediatrician, that "poo-pood" on the sensory and diagnosed with ADHD.


But then we requested an Evaluation through the School (IEP Plan) in which the school must evaluate.


Can't remember off hand the link I found that has an example letter that you can pretty much copy & paste and put your child's name in. Somewhere from chadd.org.


The letter is sent to principal, there's a meeting with the Case Study team in which you explain your concerns. Then they will decide to evaluate or not. Let's hope they do. You will get a FULL evaluation.


Then from the outcome, they will hopefully be able to help in the right direction of which kinds of therapy will help at home and during school.


Hope this helps!


Good Luck

iVillage Member
Registered: 03-31-2008
Thu, 05-15-2008 - 9:58pm

OMG! you had so much done, which is great! I want to wait for the neuropsych. results bf doing too much, however now would be a good time for me to start looking for another OT.


TY for helping me look into the differences, if any w/ the neuropsychs. I have emailed my ped.

iVillage Member
Registered: 09-18-2003
Thu, 05-15-2008 - 7:26pm

I am amazed the OT did not request the teacher to fill in a form.


I went to a PT meeting about 4 weeks before dds assessment and was told she was doing fine, she started school with a delay in fine motor skills and self care skills and seemed

iVillage Member
Registered: 03-31-2008
Thu, 05-15-2008 - 4:59pm

I filled out a questionaire, but she gave nothing to the school. not that that matters bc school doesnt see issues, as if they really observe him anyhow. well they r concerned bc he is constantly in motion, and fidgets, and handwriting they said was bc he is not motivated to do his best handwriting. they claim its bc he doesnt take his time, they have seen him do well when he does. ok well he doesnt have time when writing to sit there and form all the letters perfectly. they also said he flops around the floor during independent time and throws himself on the ground. so i explained he was probably seeking out deep pressure. she gave me a wierd look. she also didnt keep the paper that explained deep pressure or heavy work in the classroom. oh i didnt know i should have that. i didnt realize it was stapled to the bk of the OT report, i gave my copy to pupil services.


ok off track but i noticed on one website that the blankets have different weight. Why didnt she tell me what weight he should have. All she did was talk really fast and barely took a breath after suggesting the blankets, rattled it off and went on. If i have never heard of them i would have been sooo confused. She spent about 45 mins doing fine motor testing, and upper strength. thats it besides when i complained about textures,which she did the 3rd time,

iVillage Member
Registered: 09-18-2003
Thu, 05-15-2008 - 1:33pm

My friends son was diagnosed with spd by a developmental neuropsychologist at age 7....I'm not sure how important the "developmental" part of the title is though.


I can't believe that the OT didn't give more weight to your observations. Did she give you a questionnaire? Did your childs teacher have to fill out a questionaire? DDs OT spent at least 1.5hrs testing her with us present.


Wishing you the best.


iVillage Member
Registered: 03-31-2008
Thu, 05-15-2008 - 12:03pm

Ty for your response,


I am in the middle of trying to go to a neuropsych.


Also been looking into weighted blankets, anyone have

iVillage Member
Registered: 04-19-2006
Wed, 05-07-2008 - 10:59am
I have only ever dealt with OT's but I think some ladies here have delt with the nero. I know you will hear from one of the ladies soon :) They should be able to guide ya but IMO I see symptoms of SPD a lot of them to be honest and hope you find a good OT to help you. I feel for you SPD can be so hard to fidn the right treatment for and I'm not sure what state u r in but you can try to look up SPD help and the state in google. ((HUGS))
Photobucket
Photobucket