Please help!!

iVillage Member
Registered: 03-20-2006
Please help!!
4
Mon, 02-20-2012 - 10:57pm

Hi, I am so glad I found this message board. I am going to spend some time reading through old posts but for right now need to know if I am in the right place. My son was premature. He has been through speech, occupational and physical therapy. He just turned four. He was discharged from all except occupational which honestly I sort of stopped because I didn't click with the therapist. I was told he had sensory issues and that is very apparent. I have also been told he could be on the spectrum of autism (those drs who have said this say it would be a mild case). He hates bright lights. He doesn't like his hair brushed or teeth brushed. He hates loud noises or noisy places. Everything is a struggle. I just recently got divorced and I am just so overwhelmed. He hates anyone he doesn't know to say hi or talk to him. If he knows you he completely connects with you, eye contact and sweet and loving (which makes me think he is not autistic). He is very bright, his speech therapist said he scored cognitively the second highest she had ever seen in her career when he wasn't talking. He gets upset sooooooooooo frequently. I am at my wits end. I am 37 and feel like every day years are being taken off my life. I am exhausted. Everything is a struggle. Is this normal with sensory issues? Thanks in advance

iVillage Member
Registered: 03-20-2006
Wed, 02-29-2012 - 9:40pm

Thank you both for your reply. I actually found a place about an hour away that specializes in Sensory Issues. I took him for an evaluation and according to them he definitely has sensory problems. They are recommending 1-2x week OT. I am waiting to find out whether my insurance will pick up any of the cost. I also am looking into OT through the public school system which down in Florida is where he would get treatment free after 3 years of age. It just seems often that not all OT's have the training with sensory. His OT when he was in Early Steps knew of it, but wasn't trained in it. The place I just took him appears to have therapists with extra training specifically geared toward that. We are also dealing with a much more serious problem. He was born with a congenital heart defect and at our last cardiologist appointment found out his condition is worsening and we are now looking at the great likelihood of heart surgery as a child vs. what they originally thought as an adult. We are going to Miami's Children's Hospital in 2 weeks for a second opinion. I know that all his upsets and stresses throughout his day can't be good for his blood pressure or heart. I find that I really try to appease him right now so that he remains as calm as possible at least until I get the second opinion. I am so tired and stressed. As far as him maybe being on the autism spectrum...it is definitely possible. I just don't think that the label is that important to me, at least right now. I think if he has something it would be on the mild end and hopefully he will just be a little different or quirkier than others and won't need to believe something is wrong with him. Thanks again for the warm welcome.

Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Tue, 02-21-2012 - 5:19pm
To me is sounds like he's exhibiting a lot of sensory issues. There are some great suggestions on the board in dealing with them, and I'm sure some of the members will be along shortly to offer up advice. You might want to try a different OT, maybe one that has experience with sensory issues?

I look forward to getting to know you better, keep us posted on his progress.