Psych eval update
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|Thu, 11-18-2004 - 11:28pm|
I was supposed to have my 18-month-old son Adam evaluated today by a clinical psych through EI to see if he falls on the spectrum or not. My husband stayed home today to work from home- a big deal for him. I put Adam to sleep early so he would be awake by 10:30 a.m. for the eval. Then I got a phone call from the psychologist two hours before the eval. canceling the appointment. She sounded like she was in tears indicating that her daughter is in the ICU. She has been for several days and has no diagnosis. She said that she had been planning on returning to work today, but just feels like she would not be all there mentally. She indicated that she wanted to make sure to give Adam an accurate diagnosis. While I appreciate that and feel badly for her personal family situation, I am extremely upset that the eval was canceled and that she couldn't call me last night to cancel so at least I would have had some advanced warning and my husband would not have had to stay home at work. She is the owner of this agency that has two psychologists. I don't see why some type of accomodations couldn't have been made to send one of them to do the eval since there really was advanced notice.
I called her secretary and the next date Adam can be evaluated due to our own travel plans and her schedule is December 7th which although not really that far away, feels like an eternity already. We have been waiting at least three weeks for this appointment and now it is even longer. I'm just getting more and more stressed out about whether or not he is on the spectrum and it is really starting to affect my sleep. We have to go away two days after Thanksgiving- Sat. to the following Thurs.- to Arizona with Adam to see my in-laws because my husband has a work conference there. I'm extremely stressed about this trip too. I'm dreading the five and a half hour flight there and the two hour time change. Adam needs to sleep like clockwork at his regular times and eats at regular times and becomes absolutely crazed when his schedule is changed in any way. I'm particularly not looking forward to going with this diagnosis uncertainty hanging over my head. My in-laws who hardly ever see Adam are extremely dismissive of his issues and love to say he is absolutely fine because all their grandchildren are brilliant, or something to that effect. I think they just think I am basically neurotic. Maybe they'll start saying something different this trip because now that he is getting older, eighteen months, he is expected to be doing more than he is, with respect to language, etc. His arm flapping and toe walking are kind of obvious also so we will see what they say about that. I will kill my mother-in-law if she starts to brag about her other grandson who is about six months younger than Adam. He is their daughter, the favorite child's son, and lives in Colorado so they seem him much more frequently. In fact, they will just have come home from spending Thanskgiving with them so I'm sure my mother in law will not be able to stop bragging about his latest feats and comparing him to Adam. I really may have to say something this trip that I don't like when people compare Adam to other children as he is obviously delayed. We will see.
My husband thinks I need to see a therapist already because I have been getting so stressed over what is causing Adam's issues. I have always been somewhat of a control freak and it is really beginning to get to me to not know what is the root of his problems. I know on some level that I am and have been doing everything possible with therapy, etc. to help him and he has made a huge amount of progress from where he started. However, that still doesn't stop me from worrying that maybe he isn't getting enough or the right therapy that best would help him. It also doesn't stop me from worrying about what issues Adam will struggle with later on.
I also have been considering getting pregnant again relatively soon. However, my husband thinks I am way too stressed to even consider doing this anytime soon. He thinks I need to learn some relaxation techniques to help deal with my stress. It is very easy for him to say this. He doesn't observe the therapists working with Adam all the time and seeing his various issues compared to other typically developing children one sees in the mommy and me classes. I really should be grateful at all Adam's progress, especially recently, and that he does not have even more severe issues. However, I can't quite seem to stop focusing on the things that he doesn't do yet. Maybe therapy would be a good idea for me. I wonder if I could get a therapist through EI for myself.
Sorry for rambling on.