Qestions & Advice please

iVillage Member
Registered: 08-20-2009
Qestions & Advice please
8
Sat, 08-22-2009 - 3:53pm
my story is a long one so ill try to make this short. My son is now 3 years old. When he was born from day one...he cried non stop all the time day and night so i was back and forth to his dr. I only have one child so this was all new to me . When he was 2 weeks old his Dr. said he has sensory integration dysfunction, colic, and acid reflux issues. So i had him in therapy for the first 2 months of his life. Then i started to wonder if he really did have sensory problems because he seemed normal to me. I guess i was always in denial from the start . I'm still not sure if he has it or not.Everytime i would go to see his Dr about anything like an ear infection it seems like she would always bring up the sensory issue . I ended up switching dr.s . The Dr he sees now has never said one word about him having sids. So my questions are How at 3 years of age can i tell if he really has sensory problems? Will this effect him when he goes to school? will he grow out of it?Any advice or information is appreciated.
Avatar for ssjump
iVillage Member
Registered: 03-31-2003
Sun, 08-23-2009 - 9:18am

Ditto on recommending the book, "Sensational KIds."

One thing to think about is flexibility. Is your son OK being cared for by someone else? Can he adapt to changes in his environment? When upset,how does he calm himself down? My sone is 6 and there is a very short list of people I can leave him with without causing major meltdowns. He is a routine kid. To stay "calm" he needs lots of movement and repetition.

Now, there are also kids considered sensory who are the extreme opposite of my child.

Also, really find a good OT. Some OT (like our first one) are about academics and skills),but others are GREAT and know how to get kids calm and focused before working on academics.

Good Luck!


iVillage Member
Registered: 09-12-2008
Sun, 08-23-2009 - 10:15am

You got a a lot of great info from the PP's. If your state doesn't go past the age of three for the free eval you can call your local school district and ask for a developmental evaluation. Our school district doesn't recognize SPD as far as treatment goes. They recognize my son has sensory issues but won't offer OT to work on those needs. It's a real battle to get my district to do anything.

Lots of kids and grown people have sensory issues. Most of the time they can live with it and just have small quirks. Then there are children who can't function because of sensory issues. These are the kids that need to have therapy. My son would prefer to pace around a room during circle time because his body can't get enough sensory input when he is trying to sit still. He also has sound sensitivities and his behavior becomes horrible when it is too loud.

Gabe's teachers are very aware of his sensory issues and they work hard to help him. He also has wraparound service. A therapist works with him in the classroom to help him stay with the group. Those are just two examples of how sensory issues hinder Gabe. He has other sensory issues.

Since your son is 3 the school district is probably the place to start. If they won't help you with a sensory profile then a private OT eval might be warranted. If you have any other questions please feel free to ask.

Here is a website where you can take a sensory profile checklist.

http://www.sensory-processing-disorder.com/sensory-processing-disorder-checklist.html

A wee bit down the page is the checklist.



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iVillage Member
Registered: 08-20-2009
Sun, 08-23-2009 - 10:23am

My son want stay with anyone other than his grandmal. Could

iVillage Member
Registered: 09-12-2008
Sun, 08-23-2009 - 12:50pm

Caren- Great ideas for the frustration issues! And I agree schedules and routines are the best. We even use pictures and social stories with Gabe.

carsonsmom2009- It sounds like your son could be having sensory issues. Gabe is a naked time boy too! He is naked right now. We wear a lot of looses clothes on him. He doesn't like anything that hugs his neck or is tight on his waist. Although, clothing issues are a major problem for him. He had to wear a wrist ID bracelet on his ankle the other day and it was "killing" him. He cried and whined and pulled at it. It was driving him nuts and causing behavior issues.

When Gabe is out and about and it is loud or there are a lot of bright lights (places like Target, grocery store) he melts down. He can't understand simple requests, does a lot of crying, covers his ears, become rude, etc. I don't do a lot store time with him on my own. I usually only take him when his daddy is with me or when his TSS is with him.

I agree with Caren on getting a good eval. The evaluators will be able to give you a good idea on whats going on with your son.

As far as the eating thing....again Caren was right on. Does you son only like certain textures, colors, etc. Gabe won't eat anything that is mixed. So soups are out, spaghetti sauce mixed with meat is out, etc. Gabe isn't so much a texture kid when it comes to food....as he is "I don't like the way it looks, smells" kind of kid. Which could be sensory or could be a kid thing. He eats enough foods that I am not overly worried.

Let us know if you need help finding an evaluator.



Jessie mommy to Gabe(4.4 years ASD/CAS/SID)and baby Zane



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Jessie mommy to Gabe(5 years ASD/CAS/SID)and baby Zane (1 year old)



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Avatar for ssjump
iVillage Member
Registered: 03-31-2003
Sun, 08-23-2009 - 5:32pm

I agree with the others...sounds like some help and support is in order for your son, you and the family.

Try planning some sensory breaks into your routine. (a specific time before a transition or lunch or nap or....to work on getting some of that sensory information and thereby helping with the activity) Does that make sense?

I'll keep you in my thoughts and keep checking in on you!


iVillage Member
Registered: 05-29-2007
Wed, 10-07-2009 - 2:26pm

That's funny, my son is the complete opposite. Its like he doesnt even notice when someone new is watching him.

But yes on the fact that he has to be moving moving moving all the time.

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