We're home.......

iVillage Member
Registered: 11-01-2004
We're home.......
18
Tue, 11-16-2004 - 9:06pm

Well first of all, thanks again for all the positive thoughts and prayers for us today, we felt them all the way down to B-Town.

               

 

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iVillage Member
Registered: 09-30-2004
Tue, 11-16-2004 - 9:19pm

Hey doll..


Wow. You sound so strong, I

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iVillage Member
Registered: 10-23-2003
Tue, 11-16-2004 - 10:44pm

Wow what a heck of a drive you had 2 1/2 hours each way wow. Where you wanting to know what pdd means? If so it stands for persuasive developmental disorder, I think. My mind is

Lilypie 6th to 18th Ticker Lilypie 6th to 18th Ticker
iVillage Member
Registered: 11-01-2004
Wed, 11-17-2004 - 10:52am

Thanks Colleen.

               

 

iVillage Member
Registered: 11-01-2004
Wed, 11-17-2004 - 10:56am

Thanks Dawn!

               

 

iVillage Member
Registered: 11-16-2004
Wed, 11-17-2004 - 12:49pm

Rachel, First of all big ((HUGS)) coming your way. I know what it is like to hear sometihng you "know", it is hard anyway. I also think you do a ton for Olivia and you should be so proud of yourself and your dd.

So what is your next step? Have you contacted your school district? Olivia should be able to go to school right when she turns 3. From a professional perspective, you should know that school and private OT is really different, I can elaborate more if you want. Also, where in Mass are you? I went to Tufts for OT.

Gotta run, doorbell.
Michele

iVillage Member
Registered: 03-27-2003
Wed, 11-17-2004 - 2:50pm

Oh Rachel, wow, what a day you had yesterday. It sounds like it was physically and emotionally draining. What a superwoman you are. I remember the feeling I had when I opened the letter from the group that evaulated Michael and McKay. I felt like I was falling and that there was no bottom to hit. And it took me months to really feel all together again. I think that my husband took it very hard. In fact, there are a lot of days when all he'll admit to is sensory issues and some speech issues. Other days, he'll accept the whole enchilada. But it's so hard for him.

Good for you for seeking help early. Emotional support is critical, because it is so hard when you feel isolated. You have a good head on your shoulders and you've been working so hard for Olivia for so long. You'll do amazingly now that you have something exact to put your finger on. Olivia is s lucky to have a spitfire mom like you. You are a super advocate for her and she'll truly be all that she can because of you. Lucky girl.

Even with a few weeks left in EI, can your provider kind of address the issues you need to start working on? Or at least help you to formulate a good IEP plan for when you have your first IEP meeting with Olivia for preschool? I will also reccomend Helping Children with Autism Learn by Brynna Siegal. It is just amazing. It is for most kids on the spectrum and it is just chock full of great ideas. I felt like I found my lifeline when I found this book. (The same way I felt with The Out of Sync Child).

Best wishes to you and big hugs,

Rachel

iVillage Member
Registered: 04-07-2003
Wed, 11-17-2004 - 7:03pm

Many hugs to you, Rachel. I can't imagine how hard it must have been for you to hear what you dreaded - PDD. Did they say if they thought Olivia had PDD or PDD-NOS or how severe it was?

As for feeling guilty that you didn't do enough for Olivia, it makes sense you would have that feeling, but it's not your guilt to bear. What I mean is that you can have the guilt only in hindsight - you didn't know for sure if Olivia was on the spectrum. By the way, how does PDD treatment differ from SID treatment? I would think occupational therapy would be the main course of treatment for both, since SID is a big part of PDD.

You say you suspected Olivia was on the spectrum as early as 5 or 6 months old. What made you think that? I don't think my son is on the spectrum, as he is very social, but would like to hear what some of the signs are.

I really hope you are able to line up affordable help for Olivia after your EI program ends. Does your school district have a preschool program for special needs children? Where I live, my school district's early childhood center houses such a program through the metropolitan area's Special School District. If Kyle were to go there in the future, he could get occupational and speech therapy there during preschool. I'm not sure about the cost, though.

Hang in there,
Michelle and Kyle (17 months)

iVillage Member
Registered: 11-01-2004
Wed, 11-17-2004 - 9:38pm

Michele,


Yes I have already been in contact with the intake coordinator for the preschool that Olivia would transition to when she turned three.

               

 

iVillage Member
Registered: 11-01-2004
Wed, 11-17-2004 - 9:42pm

Rachel,


Thanks for being so supportive, positive, uplifting, and encouraging.

               

 

iVillage Member
Registered: 11-01-2004
Wed, 11-17-2004 - 9:51pm

Michelle,


Thanks for the positive thoughts.

               

 

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