Who/How was your child Diagnosed?

iVillage Member
Registered: 07-14-2004
Who/How was your child Diagnosed?
7
Mon, 02-28-2005 - 10:50pm
I wrote this post out before, then it disappeared! GRRR. So here it is again. I was just wondering who diagnosed- when your child was diagnosed with SI? AJ was supposed to being seeing the ST, in an offhand remark my mom mentioned how sensitive he is to everything. The ST suggested going to the OT- I was confused why he would suggest it. Read up on a book my mom bought- then it all made sense! Now I wonder how many children are

 

 

 

 

 

 

&nbs

iVillage Member
Registered: 05-02-2003
Tue, 03-01-2005 - 8:47am
We also found out from early inervention.I had never heared of it.It sure explains alot now though.Kinda like the light bulb over the head after I found out what it was.I also think that OT has helped out alot.Just yesterday Christopher cut his finger and I had to put a bandaid on it.Well he used to cry more about the bandaide then the cut or scrap.Now he loves the bandaid.I was so happy about that.Well this got very long and off track.But early inevervention has helped us alot.I may not have know what was wrong for a very long time if ever without it.Tammy
iVillage Member
Registered: 11-16-2004
Tue, 03-01-2005 - 9:10am

Marissa didn't get formally diagnosed until she was 5. Well, she was somewhat diagnosed before that but not formally since I am an OT. I started to think of bringing her in for a formal diagnosis around 4.5, when I decided I needed some help to deal with her. I emailed with an old college how has a private practice and is much older than myself and I brought her there for an eval. I truely doubt I would have gotten a referral from my dr if she didn't test low on her motor skills on her kindergarten screening. I think a lot of kids who don't have motor delays but have DSI are miss diagnosed. Marissa could have easily gotten an ADHD diagnosis and I know my friend is dealing with her dr on this issue too.

Michele
Marissa 4/99
Noah 10/3/02

Avatar for kcmc89
iVillage Member
Registered: 03-27-2003
Tue, 03-01-2005 - 9:26am

Tj was refered to early intervention because my insistance that he was not talking enough. The evaluation team originally diagnosised him with a behavior problem and speech delay.HIs psychlolgist said it was more than that and refered us to an ot and dt. The ot within 5 minutes of being with TJ told me he was sensory defensive,I never heard of it either, but the psychologist still thinks it could be something in the autism spectrum if not seizure disorders. He say a nuerologist that suggests it can be autism, abnormal chromosomes, or adhd. We have another appointment with a different neurologist on March 9th and hope for a definate answer. The early intervention has done wonders for TJ, his own ped has noticed a big change so I guess we are doing something right.

Kathy

iVillage Member
Registered: 10-26-2004
Tue, 03-01-2005 - 7:04pm

We began the process of getting my daughter diagnosed about 3 months before my daughter turned 6. I agree with what Michelle said that probably a lot of kids that don't have fine motor skills problems are misdiagnosed (or not diagnosed at all). My DD is primarily tactile defensive with some vestibular issues. I did all the research myself trying to find out what was wrong with her. When I read "The Out-of-Sync Child" it was definitely a changing point for me. I then made an appointment with her pediatrician, explained everything and she immediately agreed that what my daughter was doing was not normal and she needed help. She referred me to an OT that works with sensory issues and also suggested that we might want to consider a psych eval (possible OCD tendencies) after we had her evaluated with the OT. Sage was officially diagnosed with DSI by the OT in January after she turned 6. She was never misdiagnosed but it took a long time for anyone to recognize that her difficulties had a name, diagnosis and treatment.

Angie

iVillage Member
Registered: 09-20-2004
Tue, 03-01-2005 - 7:14pm

SDI was mentioned a few times during EI - the OT kept doing SI therapy with him, but never came out and said that he had it. It also kept popping up when I would do research on the internet, so it was always in the back of my mind. Finally Gabriels SLP had mentioned it to us as well, so we had him evaluated. Now looking back I can see all the SI related symptoms even when he was a newborn. Thats our story.

Kim

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iVillage Member
Registered: 07-14-2004
Tue, 03-01-2005 - 10:26pm
Thanks for sharing everyone, I apprecitate it. It is so nice to 'chat' with other parents of children w/DSI. I havent met anyone in person who is going through the same or similar situation.
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&nbs

iVillage Member
Registered: 11-01-2004
Wed, 03-02-2005 - 7:33pm

Well, my DD was a preemie born 2 months early.