16 year old with cp

iVillage Member
Registered: 08-12-2003
16 year old with cp
4
Tue, 08-12-2003 - 4:53pm
hi my name is graig i am 16 year old and have cp sometimes life is tough for me but i just have to think postive everyday i hate when people stare or feel sorry for me i am like anyone can do the same things sure i eat differnt can't walk or go to the bathroom but i am me i am happy being me so don't look down upon me. i want everyone to take a look at this poem

It's Life, I've Dealt, You Should Too


You work so hard to deal with this thing,

The fact that you have it and the problems it brings.

So when you finally get control of this flaw,

Everyone around you seems to watch you in awe.

You never learn why it’s happened to you,

And you must work that much harder to make dreams come true.

But what’s happened has happened, and it’s now part of life

So why give up in yourself, why live with such strife.

The best you can do is fight back twice as hard,

Just be careful, make right choices and play the right cards.

As they say what doesn’t kill you can only make you stronger,

It’s been here for awhile, it’ll be here for a while longer.

So why can’t people see past this technicality,

Having problems with walking is now my specialty.

I should have a master’s degree in what to do,

So please don’t treat me any different, I’m just the same as you.

When people have pity it just makes me feel sad,

Do you think it makes me feel better, well it makes me so mad.

I can’t stand the fact that people look at me and stare,

What you don’t think I can see you, oh I know you’re there.

I know what I can, and cannot do,

So why try to stop me, it’s not up to you.

If I want to work my ass off until death,

Let it be that way, let me use my last breath.

I’d rather go through life living, even if it is in pain,

Rather then sitting all day, slowly going insane.

So now that you know just how it has to be,

Are you going to treat me right, or like a baby.

I don’t care what you think is the best thing to do,

If you can’t support me and my choices, then the heck with you.

graig

iVillage Member
Registered: 03-26-2003
Sun, 08-17-2003 - 1:39pm
Hi Graigy16,

Great poem! I wish you luck and happiness in your life. My daughter is 14 and has Muscular dystrophy but seems to be having alot of trouble dealing with it. Since youare 16, I guess you are in High school, do you have any suggestions for someone who is physically challanged and just entering high school? Denise

iVillage Member
Registered: 05-30-2003
Wed, 09-03-2003 - 11:38am
Very well said, if only more people could understand. I think you have a wonderful outlook on life and I wish you the best in all you do...nannie
iVillage Member
Registered: 05-21-2003
Fri, 10-17-2003 - 1:20am
Dear Graig,



I have to tell you that your poem is the light at the end of a tunnel for me tonight. I am on this website tonight hoping to find a way to help my son. He is seven years old with Mild CP and having a terrible time of it. He is in second grade and until the kids started making fun of him, didn't realize he had a disability. He receives speech therapy, physical therapy, and occupational therapy. He, of course, has modifications in class, including the use of a keyboard since he cannot hold a pencil correctly yet. He also has sever reflux disease and has bad episodes of throwing up that are unpredictable. Of course the other kids think that this is just gross and don't want to sit with him at circle time, etc. He has started acting out in class and becoming aggressive. He told me tonight that he feels like a freak and doesn't know why. I had him talk to the counselor earlier today (he got sent home for an outburst in class), and she referred him to a psychologist for behavioral disorders. I know the underlying cause of the behavior is his feeling like an outcast. I would appreciate any advice you could give me to help him achieve the same positive attitude that you have. He desperatly needs to know that he has to help himself and not care about how others view him. I have an uncle who is severely retarded, so I know from growing up with him how extremely cruel people can be. Usually the people who think they are helping are the worst!! Your poem tonight has given me hope and I wish only the best for your and admire your attitude. Please feel free to email me at ejlopez@gte.net with any advice you might have. Take care. Adrienne
iVillage Member
Registered: 03-25-2003
Fri, 10-17-2003 - 9:27am

I just found his poem here last night as well. I loved it too! I ended up copying and pasting it into e-mail to send to my friends who I though would understand it. (Giving Graig all the credit for it, of course)


It also gives me some light as well.


Hugs to you,


Angie

SAHSM to Remy (6) & Daniel (3.5)
Co-cl of Work