All about my Angel

iVillage Member
Registered: 10-08-2003
All about my Angel
2
Tue, 10-14-2003 - 2:47pm
Hi All,

My name is Jennifer. I am 25 years old and have two kids and one step child. I have been married for just over a year but we were together for 6 years,(now seven) before getting married. We live in Tennessee. My dauther is the one who had CP, she was born with severe CP, could not walk, talk or even sit up. Angel was fed with a G-tube from 4 weeks on. She had trouble with her palate being too far back and so she wore a nasal trumpet in her nose down to her throat to move the palate over for clear airway. She eventually had to have a trach put in when she was almost 3. Angel had a fundoplacation done which is where they tie the stomach around the espopogus and nothing can come up. She had hip surgery done due to tight hamstrings and wore braces to put her in the frog position where they then put her in diff. brace to pull her hips in. She wore a back brace on occasion for scoli. Angel had physical therapy, occupational therapy and also feeding therapy. She was my life and I learned alot from her. Angel passed away on March 11th of this year and I am looking for things that keep her alive in my life. She will never be forgotten and I would love to help other parents out because I found alot of info off message boards while she was here. please feel free to email me if you have any questions ThePrincessJen22@aol.com I would love to answer any if you dont feel you can post it on the board.
iVillage Member
Registered: 03-21-2003
Wed, 10-15-2003 - 9:41pm

Hi Jennifer,


Welcome to the board.


Hello,
My name is Julie,I am a 27 year old,stay at home mom to 2 kids.A daughter that is 6,her name is Erika. I homeschool Erika.And my son is 4,his name is Jon.He has Global Delays,Development Delays,Speech Delays.He was diagnosised with Mental Retardation last May.He has had 2 eye surgeries.He has Strabismus and Exotropia that deals with his vision and he has a lazy eye.He has low muscle tones also.And he is allergic to all dairy products,so we have to watch what he eats and drinks.And we have to keep a eye on

 

iVillage Member
Registered: 03-19-2003
Wed, 02-04-2004 - 9:17am

Hi Jennifer...I hope you'll share an update with us...I'll be watching for you post.