a bit about me & my kids... bless 'em..
Find a Conversation
|Sat, 02-14-2004 - 4:24pm|
I have three children two with special needs, a daughter aged 12, and a son aged 9, they both have quite different issues. My daughter who is 12 has aspergers, ocd, anxiety & dyslexia as well as a good shot of hyperactivity chucked in ...I love her dearly but she drives me round the bend as we have some serious hormones running around at the moment.. oh joy a hormonal daughter with aspergers..I am praying serous amounts of patience and understanding :o)..
my son has Global developmental delay, low muscle tone , hypermobility, dyspraxia, sld, ADD,heart murmur, speech disorder, allergies cow milk soya and all major antibiotics, execema,...as well as the mishapen trachea, hypoglycaemia & ABO blood incompatability at birth...the failure to thrive , the severe spasmodic croup until he was 7 he is the most wonderful joy and pleasure and I am priveleged to call him son but my heart hurts so much for him at times with what the future may hold, he is both aware and yet unaware of his challenges. He is truly the happiest child I know and love, care for others and gentleness ooze out of him.. I think I am blessed!( slightly proud mother here)..
They have seen so many doctors, seen so many therapists,and they have both had so many tests and potential diagnoses.
Last year I told our child development paediatrician that enough was enough, the diagnosis was not really important, what was important was managing the difficulties when they arise, and ensuring all support is in place, glad to say she agreed and with liaison with education authorities and health on a regular basis my daughter has 30 hours of 1:1 support a week as school (mainstream) and my son is well on the way to getting all he needs too!
I have raised them alone alone for 5 years and have not just coped but grown in strength physically and emotionally. This Christmas I re married to a wonderful man and now I can get a little time to myself .. oh the joy and peace of going to the supermarket alone :oD
It has not been an easy ride and at times like anyone here knows its been more difficult than others.
People ( doctors, nurses, teachers, friends and family) have asked me over the years how have I coped as I also have an 11 year old too, the answer to them all has always been the same.. 1. It has never occured to me not to, 2. I have no choice and 3. I have never known it any other way so this seems pretty normal to me!
Yes my house is noisy and chaotic but it is happy and full of love. I would not want it any other way. At the end of the day I have 3 very lovely children who are growing up to be just fine young people.
I hope this can be a tale of encouragement and acceptance to alway look on the positive as the negatives you generally cannot change.
soxshui & co