A couple questions about APD and such

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Registered: 03-26-2003
A couple questions about APD and such
17
Tue, 08-15-2006 - 1:11am

First, I posted this up here becuase I don't think that auditory processing problems probably are appropriate in the hearing loss section. Though folks have questioned whether my son has hearing loss, I don't think he does. He learned to read fine, never had an articulation difficulty and his language came in basically at the normal time. His is more the autistic version of not hearing.

However, he has significant auditory processing problems. For instance, if the teacher gives him a direction in school she can only give one and has to give him a good 10 seconds to start doing what she asked, even for known things. He doesn't respond to his name even to friends particularly in noisy environments. For instance, there is one boy who is my friends son and DS loves him. It was a crowded area and this boy was screaming DS's name from less than 5ft away and ds never turned. He has trouble walking infront of cars and such because he doesn't hear them.

On the other hand the boy has perfect pitch (for hearing, not signing) and can pick out certain instruments in songs, etc. He appears ot have a gift for music though we haven't tapped it yet.

It has been a struggle because this auditory problem really causes him loads of difficulty and it is the one thing we really haven't been able to address. So finally after that background I am getting to my questions. We have tried earobics and he won't have anything to do with it.

1) what are some things that you would recomend? What works?

2) has anyone tried music therapy? We just started MT for him a couple months ago through a state program but they only cover when school isn't in session so I have to try to get the school to cover. The most interesting thing is they have noted that though Mike has significant trouble following verbal directions, he follows directions put to music perfectly.

He is in process of having his triennial done. He also has been referred to a big state ed agency called the diagnostic center to help with planning for him for many reasons. He is a tough kid to plan for. He also has a fabulous teacher so this is the time to really get things in place that are right. So I am trying to get my ducks in order and get things right for him.

Thanks,

Renee

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iVillage Member
Registered: 08-27-2005
Tue, 08-15-2006 - 4:35pm

<First, I posted this up here becuase I don't think that auditory processing problems probably are appropriate in the hearing loss section. >


Hi :)

*~~*~~*~~*~~*~~*~~*

iVillage Member
Registered: 03-26-2003
Tue, 08-15-2006 - 4:45pm
I'm glad that you're getting all of the necessary things done. He's a complex kid in his needs. You are such a great mom and great advocate. Keep it up! I don't have any words of wisdom, just a big hug of support for all that you're doing!Steph


Edited 8/15/2006 4:53 pm ET by amcanmom

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iVillage Member
Registered: 03-24-2003
Wed, 08-16-2006 - 9:38am

Hi Renee!


Auditory processing disorders (APD)

Maria :)                


iVillage Member
Registered: 03-26-2003
Thu, 08-17-2006 - 1:29am

He is 10. He is also autism spectrum, OCD, tic disorder, anxiety, mood lability...you get the idea.

We tried getting an audiologist test when he was around 7-8 but his anxiety was so high we couldn't get it done. He was really hard to test at his last set of triennials and some were not valid and others could not be done. Others I had to go to the school and walk with him to the tester because he wouldn't go with a new person on his own. He is doing loads LOADS better about that now and is due for his next triennial testing when we start school (tomorrow). In fact we already have a date for early october. So I plan on addressing the APD stuff big time now.

It was back then (7-8) that an FM trainer was initially considered but he was in such a state that other things took precidence and we didn't think he would comply with wearing one. He is ready now I think. It is hard to tell what is processing and what is comprehension since he has some trouble with that as well.

Earobics is a computer program for auditory processing. I guess it is like Fast Forward but they could offer it in the school in his classroom without yet another professional. Until last year the only adults that could work with Mike was his main teacher and aide. He wouldn't even go for speech. He does now without a problem.

I am going to ask for the FM system again.

None of you know about music therapy and its usefulness with APD do you? I thought it was amazing that he could follow directions presented in music but not verbal directions. He LOVES MT and it has been great for him in the short time he has had it. i would like to keep it if it is educationally appropriate.

Renee

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iVillage Member
Registered: 03-25-2003
Thu, 08-17-2006 - 10:43pm
I had a student who responded well to music, but we didn't have a music therapist. However, the speech pathologist always used music with him, he had a keyboard that we used as a reward and for when he was a bit "stressed out" (overstimulated). That is all the information I can offer, unfortunately...
iVillage Member
Registered: 03-26-2003
Fri, 08-18-2006 - 1:02am
Can you get a doc or one of his current therapist to recommend the music therapy? That would go a long way towards his being able to keep it.
Steph

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iVillage Member
Registered: 03-26-2003
Fri, 08-18-2006 - 9:44am

I do have a progress report from the MT that is awesome and it does recomend more sessions as well as has goals, how they are working on those goals and what progress he has made. I am going to use that as well as some research I have found.

I could likely get the clinical psych I work with the Mike sees to come to his IEP and help with that as well. They respect her oppinion.

Mike's school and teacher are really awesome. The one district lady I work with (program specialist) is also awesome. My problem, if any, is going to come from the lady just above her. The director of the elementary special ed programs. I see her vetoing it possibly.

I have them in a good spot though. They have not been able to do anything yet to address Mike's APD issues. They let that one slip (so did I but they still haven't had much to offer). His APD issues are a well documented educational need. His teacher has done things to modify for him. I was told that is what they do for APD other than possibly an FM trainer but that is another issue all together.

In his last IEP his teacher has written that Mike needs significant time to follow directions, even known ones. Typically she has to make the request only once and give him a good 10 second processing time. He has made progress in that known routines she can now give him a few directions together, if it is a known routine. But with novel things still just one at a time with lots of time to process and helps to pair with a visual. She also states that his attention needs to be gotten first by tapping his desk or similar. Tapping his shoulder is an issue though with lots of people because he is so tactile defensive. The MT report clearly stated that Mike follows directions without a problem when presented with music. (I joked with his teacher that I would make her sing, lol). There were also other good things they were working on that may help this.

Crossing my fingers on this one. I have an abstract from a research project that showed that 100% of autistics who were in music therapy showed improvement. There were 40 in the study ages preschooler to adult with control subjects I believe as well. There were actually 2 studies I found that were similar. So here's hoping.

Renee

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iVillage Member
Registered: 03-26-2003
Fri, 08-18-2006 - 3:49pm

SOunds like you have all your ducks in a very straight row. LOL

One person on the IEP team CAN NOT veto anything. It must be based on providing the child with FAPE, not what any one person thinks or even what the majority think. That's not how IEP teams work.... legally, that is. Of course, you know that. If she does try to veto it, you could try just saying that you understand that she has concerns, know how are we going to make this work. KWIM? Just pass her by. I know that she's the administrator. The "underlings" will usually bow down to administrators. (This is NOT meant as a hit to the teachers here!! This is how it is with *most* teachers and staff members that work for *most* SDs. It is a generalization. Please, do not take offense.) You don't have to.

And I'm talking to a pro. So, what more can I say. :)

Steph

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iVillage Member
Registered: 03-26-2003
Tue, 08-22-2006 - 12:40am

Your sweet. Sorry I didn't reply sooner. mike was in the hospital all weekend with an appendicitis. We just got home this evening.

Thank you for the reminder that no one person can veto. That is a good thing to remember. I forget sometimes. This lady is the head of the district elementary sped program and she likes to come to all my meetings. (loverly) I know she likes to appear like she can veto but never would put it that way and knows just how to do it. She is one of those very political types so I needed that reminder.

Thanks again stephanie.

Renee

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iVillage Member
Registered: 03-26-2003
Tue, 08-22-2006 - 2:37am
Is he doing okay?
Steph

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