dealing with questions from others
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| Wed, 12-15-2004 - 3:40pm |
Hi everybody. I am a PT working with a child who has age appropriate skills but extremely poor balance due to a lesion in his cerebellum. He now wears a helmet for safety reasons. His mother is starting to get questions about his age, his skills, his falling, etc. She asked how she should deal with this. I thought I'd come to you guys for your suggestions since you've BTDT. I know with my daughter I dealt with questions like "having a bad day?" due to her extreme irritability for the first year of life due to severe reflux. It was hard for me to deal with and it made me feel very unwelcome. After all, we were having a bad year not bad day.
My best thought for this Mom is to come up with a specific phrase. Something she can tell everyone. I always tend to go with the scientific e.g. "He has a lesion in his cerebellum that affects his balance."
Any thoughts/suggestions.
Thanks - Stephanie
Hi Stephanie, glad you dropped in...I apologize for my tardiness in answering...and I'm probably not the best person to be answering at the moment.
So I guess my answer is that find a slick, one or two sentence answer that can let them know that the helmet is for HIS protection (sometimes people think its all about THEM...KWIM?), with an opening for the questioner to feel free to ask more questions if they are interested/ I always answer questions about ALicia's condition because it is important for people who do not know anyone with a disability...that a diagnosis does not change the fact that there is a human being attached to the disability. They need to know that our children/family memeber/friends are thinking feeling loving people who happen to have something different about them.
Hi Stephanie!