Dutch-Kentucky syndrome

iVillage Member
Registered: 09-09-2003
Dutch-Kentucky syndrome
Tue, 09-09-2003 - 11:08pm
Hello, I was hust wondering if any other parents had a child with Dutch-Kentucky syndrome, trismus-pseudocamptodactyly? My 3 year old was recently diagnosed with this and it has been extremely difficult to find information about this rare disorder. I would like to talk to other parents about this. thankyou Kim