Everyone Denies Her...

iVillage Member
Registered: 11-21-2006
Everyone Denies Her...
6
Fri, 08-24-2007 - 11:09am

Im not sure if this is the right board to post this one...if its not any direction to the correct board would be welcomed.

My 4 mo. old daughter has Brittle Bone Disease and we cannot find ANYONE who will accept her into daycare or nanny for her. We cannot afford a 400-500$ a week nanny so we have been looking into home daycares and no one will help us. they say she is too much of a liability. I cannot quit my job neither can my husband as we desperatly need them to support the family. I have no family around that is able to watch her and i have called almost every possible resource that helps guide parents with disabled children....to no avail.

im stuck, im scared.... i have no one to watch her and time is running out. VERY quickly. It seems like the system just shuts her out. Im so sad because i dont want to settle for someone who wont treat her well....but everyone who ive called wont take her and the resources i have called are of no help.

what can i do? have any of you ever been through this? i need help ASAP! thanks in advance

Leah

iVillage Member
Registered: 03-24-2003
Fri, 08-24-2007 - 4:39pm

(((LEAH))))....I'm so sorry you have this problem.

Maria :)                


iVillage Member
Registered: 11-21-2006
Sat, 08-25-2007 - 9:34am

Maria-

Thank you so much for responding. I have offered to every provider I have spoken with a liability form dismissing them from any possible lawsuits....they still wont budge. This is just so frusterating! I called the hospital like you suggested but they just gave me the same old runaround. Sometimes its nice to just come here and vent and blow some steam off. I appreciate your understanding. thanks again

Leah

iVillage Member
Registered: 03-25-2003
Sat, 08-25-2007 - 9:39pm
Have you been in touch with your local early intervention entity (school district, Easter Seals, etc)? Another thought would be to call your school district's special education office and or pre-kindergarten office. They may have some additional resources. School district people often know of places or resources that differ from those the hospital might be able to provide.
iVillage Member
Registered: 04-28-2005
Sun, 08-26-2007 - 2:39am

Leah - It's been a while :0) I've been wondering how your little girl has been doing.

Photobucket

iVillage Member
Registered: 11-21-2006
Sun, 08-26-2007 - 5:52pm

Stephanie-

So nice to hear from you! Olivia is doing as well as can be expected, the occasional fracture here and there but she is such a strong girl...always smiling and laughing. It makes me so proud:)

Braden is getting so big!!! How has he been? Those pictures of him are adorable. She needs a nanny by THIS TUESDAY can you beleive how stressful it is? Luckily, my mother came through in the end and found us a private nanny. (Thank you to everyone for your help)

Shes wonderful and loving and yes i know the "warm, fuzzy feeling" you are talking about :) This society needs to help these children more...it seems like they are more focused on immigration concerns nowadays rather than helping disabled children. My child couldnt get HALF the benefits some immigrants get in this country. ARGHHH...

Thanks so much for catching up...its nice to hear from people who were there for support when we didnt even know the outcome of Olivias condition....my tough little chick surprised us all!!!!!

Talk to you soon:)

Leah

iVillage Member
Registered: 03-24-2003
Mon, 08-27-2007 - 8:50am

(((LEAH)))

Maria :)