friends' baby has CF

iVillage Member
Registered: 03-27-2003
friends' baby has CF
3
Mon, 03-22-2004 - 8:20am
hello everyone... some friends of mine just had their first baby--a girl--almost three weeks ago. she was full term, but had intestinal surgery the day after she was born and recently was diagnosed with cystic fibrosis. i'm at a loss as to what i can do. does anyone have any suggestions on how to talk to them about it? (will they want to talk about it?) i'm trying to learn all i can about the disease so that i'm informed.

thank you for your thoughts in advance...

iVillage Member
Registered: 10-21-2003
Mon, 03-22-2004 - 10:58am
I'm sorry that their baby has CF. Right now they may not want to talk about what is happening because it is new and hard to deal with. But as long as you are there and willing to listen or give a hug that will be helpful. Also don't forget to coo to the new baby, and treat her like the wonderful new gift that she is. When my DD was born (she has CP) I wanted everyone to treat her the way they did any new baby, count her toes, see who she looks like, say she's smells sweet...all the "normal" responses.

Your friends may also want to talk about their worries and fears and hopes, it's hard to say what they will be feeling... sometimes it might be better just to tell them that you want to help in any way you can. It all depends on how well you know these people to know what you should offer. I had my close friends who came over to stay with me and help me adjust. Sometimes it was to hold my DD so I could shower, sometimes it was to just sit there with me. I am a straight forward person and my bestfriends could ask me any question and I'd answer to the best of my ability (in the first few months) without feeling offended. Some people just called and asked if I needed anything. Good Luck
iVillage Member
Registered: 03-19-2003
Mon, 03-22-2004 - 12:25pm

Hi and welcome...


I know how difficult this may be for your friends and how it may be affecting you.

 


 



Avatar for jalopabean
iVillage Member
Registered: 03-27-2003
Mon, 03-22-2004 - 9:26pm

Hi, I am a mother of a child with CF and the CL for the CF board over on ParentsPlace, http://messageboards.ivillage.com/n/mb/listsf.asp?webtag=iv-ppcysticfib&nav=start, if you feel more like talking specifically about CF please join us there and invite your friend to post if she would like (Jan, cl-janx7, I hope you don't mind me posting the invite).