g-tube (Mic-key feeding tubes HARD)

iVillage Member
Registered: 01-10-2004
g-tube (Mic-key feeding tubes HARD)
2
Sat, 01-10-2004 - 5:40am
Hi

I'm a very intermittent user of parentsoup and the last time I was here, there was a separate section for tube-fed kids, so please forgive me if I have posted this in the wrong place as I couldn't find that section.

My dd is nearly 4 years old and has been fed through a gastrostomy button since she was 15 months old. For most of this time, we have had an 'Entristar' button and then an AMT-Mini for 4 weeks (before the balloon burst). We got the Mic-Key on Christmas Eve.

Our big question/problem is that the extension tubes are really hard - like Copper pipe hard. For the bolus feeding tube this isn't really a problem, but for the continuous set (she is pump fed overnight) she finds it really uncomfortable. Any one else had this problem /OR have any ideas on what we can do to soften the tubes up. I don't remember them being this hard when we first got them. We wash them in warm/hot water with dishwashing detergent.

Also, she has already pulled the button out with the balloon inflated (I assume it was because the tube is so hard it was really uncomfortable). Does this happen a lot?

Thanks for any help you can give us

Caroline and Siobhan

iVillage Member
Registered: 06-25-2003
Sat, 01-10-2004 - 8:46am

Caroline,


I am sorry, I can offer no real help, just support. I am mom to a

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 04-05-2003
Thu, 01-15-2004 - 5:47pm
Hi,

My dd is almost 4 also and is tube fed. We have a Mic-Key button and do not have hard extension tubing. It is softer than oxygen canula tubing. I have only had this one type and have been happy with it. The only problem I have is getting it clean on the inside. My dd is continiously fed overnight, also. She have never pulled it out although I have caught her lots of times pulling pretty hard. I suppose it is only a matter of time and that will happen. If you want any info on the type I have like order numbers or anything I would be happy to help. Netti and Jenna cnbraun@venturecomm.net