g-tube (Mic-key feeding tubes HARD)
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|Sat, 01-10-2004 - 5:40am|
I'm a very intermittent user of parentsoup and the last time I was here, there was a separate section for tube-fed kids, so please forgive me if I have posted this in the wrong place as I couldn't find that section.
My dd is nearly 4 years old and has been fed through a gastrostomy button since she was 15 months old. For most of this time, we have had an 'Entristar' button and then an AMT-Mini for 4 weeks (before the balloon burst). We got the Mic-Key on Christmas Eve.
Our big question/problem is that the extension tubes are really hard - like Copper pipe hard. For the bolus feeding tube this isn't really a problem, but for the continuous set (she is pump fed overnight) she finds it really uncomfortable. Any one else had this problem /OR have any ideas on what we can do to soften the tubes up. I don't remember them being this hard when we first got them. We wash them in warm/hot water with dishwashing detergent.
Also, she has already pulled the button out with the balloon inflated (I assume it was because the tube is so hard it was really uncomfortable). Does this happen a lot?
Thanks for any help you can give us
Caroline and Siobhan