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|Wed, 05-09-2007 - 6:13pm|
Hi-This is my first time on this site. I would like to get your opinion on something. My daughter has eustachian tube dysfunction and a mild hearing loss in both ears. However, her hearing loss gets worse at times, and up until recently it was my understanding that her hearing gets worse when there is fluid , due to the ETD. I had asked several times why her ears were retracted, when she had no fluid, and was told that she probably had fluid but they couldn't see it.However, during her last hearing test, which I took her in for because I knew her hearing was getting worse, , the audiologist said there was no fluid but that her ears were retracted. She explained that that was why she couldn't hear as well, and my daughter at this point had only realized that her left ear was (blocked)as she calls it, but it was in fact both ears. The following day she said her right ear had (went) out as well. Her last hearing test was 35db in the 250, 500, and 1000 frequency, 25db in 2000 freq, & 38db in the 8000 freq. Her hearing became worse at this time and in fact is still the same. She yawns to get her ears to open, but said they just close right back up. The ENT said the only thing they can do at this point is to put tubes in again for the fluid, but I explained that even when she had the tubes, which were removed because they were blocked with fluid, her ears would still retract, and stay that way for long amounts of time. At this point I feel that putting in tubes are not solving the problem, and the mild loss she has in her right ear is partly due do scar tissue from having the tubes put in. The ENT said if I don't put the tubes in then there is nothing else he can do, just give her a decongestant everyday, to see if it helps to keep them open, which I am not doing because I do not think that giving her a decongestant on a daily basis is safe. She uses nasonex every day,but it doesn't always help.I would like your opinion on what you would suggest, if this were your child, what would you do, and also would you recommend hearing aids for this degree of loss. The audiologist explained that she could be fitted with one of two kinds of hearing aids. The first kind she would wear at all times, and would only turn them on when she knows she is not hearing everything, and the second kind would adjust themselves and she would not have to do anything. The ENT says no hearing aids, because at her age, she would not be able to handle the social implications she would be faced with. She is 11 years old. Please tell me what you would suggest. Thank you.