Hi from Sandra!

iVillage Member
Registered: 02-19-2004
Hi from Sandra!
7
Fri, 10-01-2004 - 9:21pm

I just wanted to take a moment to say hi to everyone here at the Kids with Special Needs board.

iVillage Member
Registered: 10-21-2003
Sat, 10-02-2004 - 8:28am
Hi Sandra...glad to have you guys come on over. So far I don't have any used/unused equipment exchange items but who knows in the future. Most of my DD things have actually come to us second hand through our children's hospital or Early Intervention so we have been lucky. Oh I'm SHelley a SAHM to ALicia 6 1/2 severe athetoid cp, with a seizure disorder (controlled by meds), she is in a wheelchair and does not speak using her mouth...I've decided that I cannot say nonverbal because there are lots of sounds coming out of her these days! She uses eye gaze and computer scanning to talk. My DH and I also have a son Jordan who is 20 months old and is our "garden variety" child. Can't wait to see what your folder will be like!
iVillage Member
Registered: 02-19-2004
Sat, 10-02-2004 - 1:03pm

Hi Shelly!

iVillage Member
Registered: 10-21-2003
Sat, 10-02-2004 - 3:52pm
Before Jordan was born everyone (not me but those family members!LOL) was worried about A) how Alicia would react and B) how he would respond to ALicia. DUH!!! She was like any 5 year old girl...she wanted a real live baby to care for...trust me when that baby cried Mom was called from wherever she was to tend to this baby. I had to let Alicia help with EVERYTHING. Ever try to change a diaper on a 3 month old with a 5 yr old, floppy mop, holding the diaper down...and then trying to DO the darn thing up?!! We had a blast. As for the B worry...Jordan thinks that girls who WALK are strange!!! I tried to tell people that he would think that everyone had a sister in a wheelchair, that he wouldn't know any different...and this is the way it is. He is very interested in helping to feed ALicia...and he carefully puts "bites" (his word for food)in her mouth and she just as carefully makes sure that she doesn't start chewing until his fingers are gone (I wish she'd do that for me), he also LOVES pushing her in the wheelchair and NO ONE can touch that chair while HE is pushing.

ALicia has become much more vocal since she started school last year, there are no words yet....but sometimes you THINK that she has said a word, or a sentence without forming the words with her mouth. When I ask her if she said what I thought I heard she will answer yes (with her eyes!). I used to think it was wishful thinking or that I was going crazy but her aide at school has told me that she heard her say...no...good...thanks...all little things, in context. SO maybe some day it will come...if there is any wish that I have for ALicia it is the ability to speak...using your voice gets you so much! Just being able to say get out of my way when someone stands in her line of vision.

Anyway I am in a very chatty, rambly mood at the moment so I'll let you go before I bore you to death...and if I do you can tell me I don't get offended easily.LOL Shelley
Avatar for mt_happydaze
iVillage Member
Registered: 03-26-2003
Sat, 10-02-2004 - 7:56pm
Hi Sandra! Glad to see the equip. exchange board found a new home and didn't just disappear.

I'd love to hear about the job you are persuing--do you need special training or education for that or just real life experience? Sounds interesting.

Thanks for the first hand info. on Elavil(down below). It's nice to hear from someone who is taking it since Sydney can't tell me if it is bothering her.

See ya around!

Pam

iVillage Member
Registered: 03-19-2003
Mon, 10-04-2004 - 12:48pm

Sandra, I'm so excited to see you again...and yes, we have met somewhere before!

 


 



iVillage Member
Registered: 02-19-2004
Mon, 10-04-2004 - 10:01pm

Shelley, I am not going to tell you to shut up!!

iVillage Member
Registered: 02-19-2004
Mon, 10-04-2004 - 10:02pm

Thanks for the welcome Jan!