Juvenile Rheumatoid Arthritis

iVillage Member
Registered: 06-25-2003
Juvenile Rheumatoid Arthritis
1
Sat, 06-28-2003 - 2:05pm
Hi everyone,

I have a child with systemic juvenile rheumatoid arthritis, and would be very interested in sharing with other parents in the same situation. Holly has had arthritis since she was 9 months old, she is 9 and a half years old now. We have tried many different meds, had splints, and other health issues as well. One of the the things i have learned living with this disease is that life is never dull, and there are many other people out there going thru this too. So lets post together and share the good, the bad and the ugly!!!! Aj
Avatar for careyfeel
iVillage Member
Registered: 06-18-2003
Sun, 06-29-2003 - 11:27pm
My son , who just turned 20, has JRA,but polyarticular, not systemic. He was diagnosed with it at age 8 and by age 12 it was in over 20 joints.At age 12 he was diagnosed with fibromalgia.After several years of major flare where he could even get out of bad some day, he has only had some minor flares in the past seven years. He walk with a cane and is on meds. but graduated fifth in his high scool class and lives at college where he is doing very well.

Have you worked with The American Juvenile Arthritis oRganizatio (AJAO),They were a wonderful source of information to me and we loved attending their conference which are held once a year.We ,as parents, got hear specalists and go to workshops on subjects related to JRA. My son got to meet other children like him. We also got to travel all over the country.Due to our fianacial situation we have not ben able to attend the last thre conferences and I really misssed them. Fran.My e-mail is :careyfeel @aol.com if you would like to talk more. By the way,living with JRA is never SULL